last update: 20151130
Glen W. White - University of Kansas, US
Craig Ravesloot - University of Montana, US
Chiaki Kotani - Ritsumeikan University, Japan
Kyung-Mee Kim - Soongsil University, Korea
■Role of Centers for Independent Living
・Community-based, cross-disability, non-profit organizations
・Designed and operated by people with disabilities
・Operate according to a strict philosophy of consumer choice and control
・Offer services that enhance the rights and abilities of people with disabilities to actively participate in their communities
■Independent Living Services
・Core Services:
Peer Support
Information and Referral
Individual and Systems Advocacy
Independent Living Skills Training
・Emerging Services:
Nursing Home Emancipation
Leisure and Recreation
Transportation
■Research Purpose & Objectives
・To address the fact that there is little or no empirical evidence concerning how center services affect the community participation of CIL consumers
・To obtain staff members’ reflections on the strengths and weaknesses of the services they provide
・To examine commonalities between participating countries
■Research Methods & Procedures
・Community Concerns Report Method (Schliner & Fawcett, 1998)
・Instrument Construction
・Pilot Test (US only)
・CIL Survey translation and testing
・Recruitment and Data Collection
・Data Analysis
■Survey Example:
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■Content Categories
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■Developing a Process for the Comparison of CIL Data from the US, Korea and Japan
・The international data were collected during late spring-early summer 2012
・US - 450 CILs - randomly selected 90 - received data from 420 staff from 65 CILs
・Korea - 120 CILs - received data from 175 staff from 54 CILs
・Japan - 121+ CILs - received data from 288 staff from 65 CILs
■CIL staff Top 5 items by order of importance US-Korea-Japan
◆CIL Staff Top 5 Importance Ratings US-CILs
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◆CIL Staff Top 5 Importance Ratings Korea-CILs
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■Content Categories
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◆US-Korea-Japan Top 10 Importance by Category
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◆US-Korea-Japan Top 20 Importance by Category
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◆CIL Staff Top 5 Importance Ratings Japan-CILs
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◆Core Services Comparison US and Japan
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■Comparison of CIL Service Strengths and Weaknesses
・Strength
Item that has both high importance and high satisfaction
・Weakness
Item that has high importance, but low satisfaction
◆US Top 5 Strengths
Advises consumers about benefits -- 90%
Provides services to empower consumer choice -- 87%
Has services that encourage personal consumer advocacy -- 86%
Makes referrals to other disability support service providers -- 85%
Partners with other community agencies to meet IL needs -- 85%
◆US Top 5 Weaknesses
Works with worship sites so interested consumers can participate -- 29%
Gives info on accessible medical services -- 27%
Gives education/computer skills workshops -- 27%
Newsletter & website info on accessible community resources -- 26%
Helps increase access to medical services -- 26%
◆Korea Top 5 Strengths
Provides PAS Management trg. -- 92%
Helps consumers find the PAS they need -- 91%
Gives competent and respectful peer counseling -- 91%
Helps integrate emancipated consumers into the community -- 91%
Provides services to empower consumer choice -- 89%
◆Korea Top 5 Weaknesses
Promotes positive disability portrayal -- 34%
Helps PWD transition to employment and community living -- 22%
Advocates for all PWD rights & Chron/Con -- 21%
Helps PWD have equal opportunity in applying for jobs -- 20%
Offers home access mod. Programs -- 17%
◆Japan Top 5 Strengths
Provides services to empower consumer choice -- 97%
Helps integrate emancipated consumers into the community -- 96%
Gives nursing home eman-cipation services -- 96%
Advocates for policies about community services that affect consumers -- 95%
Helps consumers find accessible and affordable housing -- 95%
◆Japan Top 5 Weaknesses
Promotes positive disability portrayal -- 40%
Helps involve PWD in the legislative process -- 35%
Uses grassroots advocacy to increase community accessibility -- 30%
Works with local businesses to increase accessibility -- 28%
Gives regular self-advocacy training -- 28%
◆USA-Korea-Japan Top 10 Strengths by Category
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◆US-Korea-Japan Top 10 Weaknesses by Category
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■Lessons learned
・CIL staff in all three countries have somewhat similar response patterns
・US, Korea, Japan CIL staff all viewed the following content categories as less important in comparison to other categories:
Employment
Mental health
Assistive technology
Health care
Recreation
■Lessons learned (con’t)
・While Korean and Japanese staff emphasized personal assistive services and peer counseling, they found value in the process dimensions and how the services are delivered, which reflects core philosophy of IL..
・In the top 20 items of importance Japanese and Korean CIL staff agreed on the importance of at least one item in each of the 5 US core service areas.
■Korean and Japanese CILs indicated the importance of peer support at least twice as often as US CILs
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■Limitations
・The original survey was based on US CIL experience and history with services and may not reflect all the types or descriptions of CIL services offered in Korea and Japan.
・These findings should be interpreted through a cultural, economic and political lens. The intent of this study is not to determine whether one country offers better CIL services than another, but to examine our commonalities.
■Next Steps
・We will be conducting a deeper analysis of these data to determine any other key relationships in the way CIL staff view their services across each of the three countries.
・This study will be presented and discussed with the leaders of KOIL and JIL to determine further lessons that can be learned.
■Acknowledgements
・Consumer Empowered Team
National Council on Independent Living(NCIL)
Association of Programs for Rural Independent Living (APRIL)
U.S. disability leaders and CIL experts
・International Collaborators
Japan Council on Independent Living(JIL)
Korean Federation of Centers for Independent Living of Persons with Disabilities(KOIL)
・National Institute on Disability and
Rehabilitation Research (grant # H133B060018)
■Contact Information
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■Questions and Answers
＊作成：KOTANI Chiaki