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KAWAGUCHI Yumiko

[Japanese]

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Graduate School of Core Ethics and Frontier Sciences, Ritsumeikan University

■Areas of Interest

◆ Policy on Supporting ALS Patients
◆ Familiarizing Safe Medical Care
◆ Collaboration between Medical Treatment and Welfare
◆ The Role of Non-Profit Organizations in Medical Health Welfare Field
◆ Necessary Care to Merge or to Connect Humans and Machines
◆ Popular Usage of Cough Machines (Mechanical In- Exsufflator) and Cough Assist

■Academic Achievements

2014:
◆December 22, 2014 Beyond the Terminal Stage: For All Involved in ALS and All Intractable Diseases,Seidosha, 250p. ISBN-10: 4791768388 ISBN-13: 978-4791768387 2,000 yen + Tax [amazon][kinokuniya]

『Beyond the Terminal Stage: For All Involved in ALS and All Intractable Diseases』


2010:
◆March 20, 2010 "International Deployment of Organization of Patients' Groups: "Is global standard necessary for ALS?""
Ars Vivendi 2:265-296

2009:
◆December 15, 2009 Maybe she just wants to breathe,Igaku-Shoin,270p. ISBN-10: 4260010034 ISBN-13: 978-4260010030 2100yen [amazon][kinokuniya]

『Undying Body: Living in a Daily Life with the View of ALS』


◆October 22, 2009 "Encouragement of Medical Treatment, Health and Welfare to Support Incurable Patients in Communities"
Japanese Society of Public Health Symposium, Nara

HAN Sung-Min, TENBATA Daisuke & KAWAGUCHI Yumiko September 26-27, 2009 "Infomation Communication and Classification of Disabilities"

ITO Kayoko, KAWAGUCHI Yumiko, KAWASHIMA Koichiro & NOZAKI Yasunobu September 27, 2009 "ALS: Affirmation of Ars Vivendi that Precedes People's Acceptance" (Abstract in Japanese) The 6th Annual Convention of Japan Society of Disability Studies, Ritsumeikan University

◆KAWAGUCHI Yumiko & KONAGAYA Momoe (eds.) August 10, 2009 Pocket Guide of Using Ventilators at Home: Life and Support, Ishiyaku Shuppna, 212p. ISBN-10:4263235290 ISBN-13:9784263235294 2730

◆June 19, 2009 "End of the Life Care for Incurable Patients"
The 14th Symposium of Japanese Society for Palliative Medicine, Osaka International Convention Center

◆June 14, 2009 "Issues concerning Informed Consent of NPPV (Noninvasive Positive Pressure Ventilation) and TPPV (Tracheostomy Positive Pressure Ventilation)"
National Meeting of DPI (Hakodate Meeting), General Welfare Center

◆March 29, 2009 Founding Meeting of TIL Ventilator Network, Tokyo International Forum

◆March 15, 2009 "Home Care of ALS Patients"
Report at Section Meeting of Japan Academy of Home Care, Osaka Prefecture University

◆February 14, 2009 "Living Will and Dignified Death" (Speech from Skeptical Position)
Symposium Organized by Kyoto Medical Association, Kyoto Karasuma Hotel

◆February 8, 2009 "Medical Care in View of the Persons Involved"
Symposium Organized by Non-Profit Organization Medical Care Net (Japanese), Kyoto ASNY Hall, Leaflet in Japanese (http://web.kamogawa.ne.jp/~sugimoto/icare090208.pdf)

◆February 1, 2009 "Expectation toward Care Establishing with Japanese Unique One, such as ALS Care" (Article in the Cover Stories)
Hoken no Kagaku February 2009, Vol. 51, Kyorin Shoin

◆January 2009 "Patients Associations in the World: Fundraising with Images"
Homon Kango to Kaigo January 2009, Igaku Shoin

◆January 2009 "Autonomy of Nursing" Dialogue between Kawamura, Sawako and Kawaguchi, Yumiko
Kangogaku Zasshi January 2009, Igaku Shoin

◆January 2009 "Challenges on Introduction and Limitation of Noninvasive Positive Pressure Ventilation for Home Cared ALS Patients: From the Positions of Patients, Families and Care Givers"
Report of FY2008 MHLW Grant Research (Projects on Intractable Diseases)

2008:
[Book Review Articles in KINOKUNIYA SHOHYO KUKAN BOOKLOG]
◆December 31, 2008 "Book Review: UENO Chizuko & NAKANISHI Shoji (eds.) Toward a Needs-oriented Welfare Society"
KINOKUNIYA SHOHYO KUKAN BOOKLOG For Details(http://booklog.kinokuniya.co.jp/kawaguchi/archives/2008/12/31/) (Japanese)

◆December 21, 2008 "Book Review: TERAMOTO Akihisa, OKABE Kosuke, SUENAGA Hiroshi & IWAHASHI Seiji (eds.) Good Assistance?"
KINOKUNIYA SHOHYO KUKAN BOOKLOG For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2008/12/21/) (Japanese)

◆November 25, 2008 "Book Review: Noëlle Châtelet La Dernière Leçon"
KINOKUNIYA SHOHYO KUKAN BOOKLOG For Details(http://booklog.kinokuniya.co.jp/kawaguchi/archives/2008/11/25/) (Japanese)

◆October 22, 2008 "Book Review: UENO Chizuko (eds.) Care: Ideology and Practice 3 Being Cared"
KINOKUNIYA SHOHYO KUKAN BOOKLOG For Details(http://booklog.kinokuniya.co.jp/kawaguchi/archives/2008/10/22/) (Japanese)

◆September 8, 2008 "Book Review: MORIOKA Masahiro Love Lesson of Vegetarian Boys"
KINOKUNIYA SHOHYO KUKAN BOOKLOG For Details(http://booklog.kinokuniya.co.jp/kawaguchi/archives/2008/09/08/) (Japanese)

◆June 16, 2008 "Book Review: RikunabiNEXT Tech Group We, the Crazy Engineerism"
KINOKUNIYA SHOHYO KUKAN BOOKLOG For Details(http://booklog.kinokuniya.co.jp/kawaguchi/archives/2008/06/16/) (Japanese)

◆April 1, 2008 "Book Review: Gendai Shiso March Issue: Special Topic: Study of Patients: Ars Vivendi"
KINOKUNIYA SHOHYO KUKAN BOOKLOG For Details(http://booklog.kinokuniya.co.jp/kawaguchi/archives/2008/04/01/) (Japanese)

◆March 14, 2008 "Book Review: BROWN Rebecca The Gifts of the Body"
KINOKUNIYA SHOHYO KUKAN BOOKLOG For Details(http://booklog.kinokuniya.co.jp/kawaguchi/archives/2008/03/14/) (Japanese)

◆March 2, 2008 "Book Review: Closed Hospital Ward by HAHAKIGI Hosei (Shincho Bunko)"
KINOKUNIYA SHOHYO KUKAN BOOKLOG For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2008/03/post_16.html) (Japanese)

◆February 7, 2008 "Book Review: Gendai Shiso February Issue, Special Topic: Fall of Medical Care: Economy over Life (Seidosha)"
KINOKUNIYA SHOHYO KUKAN BOOKLOG For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2008/02/post_15.html) (Japanese)
cf. Gendai Shiso February Issue, Special Topic: Fall of Medical Care: Economy over Life (Seidosha)" 36-2 (Japanese)

[Researches/Writing/Report at Societies/Projects]
◆Project Member of the Study Group on Ars Vivendi of Intractable Diseases in FY 2008, Global COE Program Ars Vivendi

◆HASHIMOTO Misao & KAWAGUCHI Yumiko December 20, 2008 "On New Business of Care Staff Dispatch Service by the Persons who Experienced ALS" JALSA Seminar

◆December 17, 2008 "Arrangement of Issues on Introduction and Cessation of NPPV: From the Viewpoint of Patients, Family and Caretakers"
Study Report, Seminar on QOL Improvement of Specified Disease Patients

◆December 13, 2008 Report "In Order to Live with the Ventilator in Regions: Sakurakai's "Evolving Care" from the Past to the Future"
The 1st National Meeting of Medical Care Groups, Kyoto University of Education

◆HASHIMOTO Misao & KAWAGUCHI Yumiko December 13, 2008 "Minotiry's Right to Die Decided by National Consensus"
The 14th National Meeting of Study Group of Disabled People's Policies

◆December 5, 2008 "In Oder for Patiets with Severe Nervous Disordered to Live in Community"
Seminar to Support Severe Nervous Disordered Patients in Communities, Hosted by Support Center for Incurable Disease in Ishikawa Prefecture

◆November 17, 2008 "Comparison of Social Systems on ALS Patients between Japan and South Korea"
The 8th International Symposium on Living Issues in Japan, China and South Korea, Academy of Housing for Life and Well-Being

◆November 11, 2008 "How the Basic Support Should Be for the ALS Patients Cared at Home"
Seminar on Incurable Diseases, Aichi Medical Association

◆September 15, 2008 "From the Experience of Care Taking: Considering the Antidiscrimination Law for Disabled"
Commentator, the 14th National Meeting in Kyoto 2008 To Think Our Life After 100 Years in Traditional Kyoto, Organized by The National Network of Clinics and Citizens for Home Care

◆September 13, 2008 "To Live with a Ventilator in Communities"
The 3rd Kanagawa Medical Care Practitioners Seminar

◆August 29, 2008 "The Current Condition and Problems of Support for ALS Patients in Japan (Report Abstract in Japanese)
The 13th Symposium of Japan Intractable Illness Nursing Society "Considering the Future of Intractable Illness Care"

◆August 2008 "Brain Machine to Communicate Mind" (Special Feature on Brain Science)
Kagaku August (Vol.78 No.8):877-880, Iwanami Shoten

◆August 1 - 3, 2008 Kawaguchi, Yumiko et al. Survey on South Korea's ALS Patients Cared at Home with Ventilators
Ritsumeikan University Global COE Program Ars Vivendi "Research on Network Establishment for Incurable Disease Patients in East Asia"

◆July 21, 2008 "On Safe Home Care as a Result of Cooperation with the Medical Care"
"Evolving Care" in Kyoto For Details (http://d.hatena.ne.jp/sakura_kai/20080701) (Japanese)

◆June 25, 2008 "A Health Care System for Old Old Starting from 65 Years Old?"
Kikan Fukushi Rodo 119

◆June 22, 2008 Report
Convention for Association of Center for Independent Living, Senri Life Center Building

◆June 20, 2008 Interview "What do You Think about End-of-life Care?: Over Consultant Fee on End-of-life of Old Old"
Silver Shinpo (Kankyo Shinbunsha)

◆June 1, 2008 "Human Use of the Brain Machine: Politics and Economics concerning Connection and Continuation"
Gendai Shiso 36-07(2008-6):98-111

◆March 30, 2008 "What I Achieved by Loosing - Achievement in Daily Life of Home-Cared ALS Patients"
Hashimoto, Misao Symposium, Shimonoseki

◆March 15 & 16, 2008 Symposist, The 12th Academic Symposium of Japan Home Care "Assistance of Living for the Elderly who Highly Depend on Medical Care", Tokyo

KAWAMURA Sawako & KAWAGUCHI Yumiko (Listener) March 1, 2008 "Genealogy of Care of Incurable Disease: From Subacute Myelo-optico-neuropathy to Home Mechanical Ventilation" (Interview)
Gendai Shiso 36-3(2008-3):171-191

◆February 18, 2008 "How do We Assist Home Care of Persons who Need Medical Care?"
The Second Training Session Working-level on Medical Care in Kanagawa
from 10:15 p.m. to 10:45a.m., Memorial Hall at Tsurumi University, Organizer:Training Session Working-level on Medical Care in Kanagawa

◆ANDO Michihito, HOTTA Yoshitaro & KAWAGUCHI Yumiko February 17, 2008 "A Consideration on Disabilities and QOL: On Welfare Evaluation of ALS Patients with Artificial Respirators"
Identity and Alterity in Multiculturalism and Social Justice: "Conflicts", "Identity", "Alterity", "Solutions?", Ritsumeikan University

◆February 2, 2008 "Research on QOL of Specified Disease Patients"
The Second Kyoto Seminar Held by Study Group on Incurable Disease and Ethics Campus Plaza Kyoto

NAKAJIMA Takashi & KAWAGUCHI Yumiko (Listener) February 1, 2008 "Regaining QOL and Palliative Care: Intellectual Strategies under Medical Catastrophe" (Interview)
Gendai Shiso 36-2(2008-2):148-173

◆January 26 - 27, 2008 "Evolving Care" National Expansion Project Organized by NPO Sakura Kai (Information in Japanese (http://homepage2.nifty.com/ajikun/sinkasuru_kaigo/2007kakudai.htm))

◆January 14, 2008 "Reviewing Metaphor of ALS and TLS (Totally Locked-in State): From Experiences of Home Care to Persons who Have Serious Communicative Disorder"
Abstract in Japanese, Kyoto University Clock Tower Centennial Hall
◆January 11, 2008 "Decision-making on Medical Care: From a Standpoint of Families"
Lecture on Introduction to Medical Care I: Clinical Ethics (Medical Care and Society) at Fukushima Medical University, from 10:20 a.m. to 11:50 a.m., The 4th Lecture Room at School of Medicine

2007:
[Book Review Articles in KINOKUNIYA SHOHYO KUKAN BOOKLOG]
◆December 31, 2007 "Book Review: Le Scaphandre et le papillon Written by Jean-Dominique Bauby & Translated by KONO Mariko, Kodansha"
KINOKUNIYA Shohyo Kukan BOOKLOG, For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/12/post_.html) (Japanese)

◆December 10, 2007 "Book Review: Mother ! Don't Kill Written by YOKOTSUKA Koichi, Commentary by TATEIWA Shin'ya (Seikatsu Shoin)"
KINOKUNIYA Shohyo Kukan BOOKLOG, For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/12/post_13.html) (Japanese)

◆November 27, 2007 "Book Review: The End of Poverty: Economic Possibilities for Our Time Written by Jeffrey David Sachs Translation by SUZUKI Chikara & NONAKA Kuniko (Hayakawa Shobo)
KINOKUNIYA Shohyo Kukan BOOKLOG, For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/11/post_14.html) (Japanese)

◆November 6, 2007 "Book Review: Recommendation of Plain Food: A Recipe Written by MAKUUCHI Hideo (Toyo Keizai Shinbunsha)"
KINOKUNIYA Shohyo Kukan BOOKLOG, For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/11/post_6.html) (Japanese)

◆October 23, 2007 "Book Review: Spectacle of Disease: Politics of Bio-pouvoir Written by MIMA Tatsuya (Jinbun Shoin)"
KINOKUNIYA Shohyo Kukan BOOKLOG, For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/10/post_12.html) (Japanese)

◆October 9, 2007 "Book Review: Hitler's Shiver/Mao Tse-tung's Shuffle: The 20th Century Seen from Neurology(Internal Medicine) Written by KONAGAYA Masaaki (Chuko Shinsho)"
KINOKUNIYA Shohyo Kukan BOOKLOG For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/10/20.html) (Japanese)

◆September 10, 2007 "Book Review: Theory of Nations of Medical Care: Stopping Collapsing the Medical Care System! Written by OMURA Akito (Nikkan Kogyo Shinbunsha)"
KINOKUNIYA Shohyo Kukan BOOKLOG For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/09/post_11.html) (Japanese)

◆August 24, 2007 "Book Review: At Last, Learning to Live Written by Jacques Derrida, Translated by UKAI Satoshi (Misuzu Shobo)
KINOKUNIYA Shohyo Kukan BOOKLOG For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/06/post_1.html) (Japanese)

◆August 16, 2007 "Book Review: Die Verwandlung Written by Franz Kafka, Translated by IKEUCHI Osamu (Hakusui u Books)"
KINOKUNIYA Shohyo Kukan BOOKLOG For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/08/post_8.html) (Japanese)

◆August 5, 2007 "Book Review: Mickey Mouse at Night Written by TANIGAWA Shuntaro (Shinchosha)"
KINOKUNIYA Shohyo Kukan BOOKLOG For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/08/post_9.html) (Japanese)

◆July 22, 2007 "Book Review: How to Write Your Research Plan: For those who Plan to Enter a Graduate School Written by SENOO Kenichiro (Daiyamondosha)"
KINOKUNIYA Shohyo Kukan BOOKLOG For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/07/post_7.html) (Japanese)

◆June 25, 2007 "Book Review: Group of Reporters of Kyoto Shimbun Reeds that Are not Broken: Live between Medical Care and Welfare"
KINOKUNIYA Shohyo Kukan BOOKLOG For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/06/25/) (Japanese)

◆June 14, 2007 "Book Review: Madonna's Necklace: Hashimoto, Misao's Living with ALS (Japanese) Written by YAMAZAKI Maya"
KINOKUNIYA Shohyo Kukan BOOKLOG For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/06/14/) (Japanese)

◆June 2, 2007 "Book Review: Nothing has Happened Written by Harold Pinter & Translated by KISHI Tetsuo"
KINOKUNIYA Shohyo Kukan BOOKLOG For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/06/02/) (Japanese)

◆May 28, 2007 "Book Review: Das Parfum Written by Patrick Süskind (Bunshun Bunko)"
KINOKUNIYA Shohyo Kukan BOOKLOG For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/05/28/) (Japanese)

◆May 23, 2007 "Book Review: Levinas: What do We Live for? Written by KOIZUMI Yoshiyuki (NHK Shuppan)"
KINOKUNIYA Shohyo Kukan BOOKLOG, For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/05/post.html) (Japanese)

◆May 16, 2007 "Book Review: Sky in the Picture Poem by TANIGAWA Shuntaro, Picture by ARAKI Nobuyoshi"
KINOKUNIYA Shohyo Kukan BOOKLOG, For Details (http://booklog.kinokuniya.co.jp/kawaguchi/archives/2007/05/post_4.html) (Japanese)

[Researches/Writing/Report at Societies/Projects]
◆December 14 & 15, 2007 Research Report Meeting of QOL Group "Announcement over ALS Viewed from Newspaper Reports in 2007: Self and Others in Advance Directives"
For Details in Japanese (http://homepage2.nifty.com/ajikun/memo/2007qol.pdf)
Grant Money of Scientific Research of Ministry of Health, Labour and Welfare, Research Business for Overcoming Intractable Disease "Research on Care that Leads to Improvement of Quality of Life for Intractable Disease" Chief Researcher: Nakajima, Takashi, Tokyo Medical & Dental University

HOTTA Yoshitaro & KAWAGUCHI Yumiko December 14, 2007 "Ethical Issues on Wearing LTMV of Patients with ALS: Through Examination of Discussion in Europe and the United States"
(Grant Money of Scientific Research of Ministry of Health, Labour and Welfare, Research Business for Overcoming Intractable Disease "Research on Care that Leads to Improvement of Quality of Life for Intractable Disease" Chief Researcher:Nakajima, Takashi) Tokyo Medical & Dental University

◆November 29, 2007 "Techniques of Attending Important Persons' Death: Considering Attending", Plan: Network of Livers in Eastern Tokyo
Passrelle Hoya, For Details (http://www.passerelle.or.jp/) (Japanese)

◆November 25, 2007 "Systems and Medical Care Necessary for Long-Term Care at Home: "Advancing Care" of Sakurakai"
Kanazawa, Host: Medical Network of Incurable Disease in Ishikawa Prefecture

◆November 14, 2007 "ALS and Euthanasia/Death with Dignity", Guest Speaker of "Social Issues", Faculty of Economics, Keio University, Professor Takakusagi, Koichi, Keio University

◆KAWAGUCHI Yumiko & SHIMOJI Maki November 10, 2007 "Ethics of Cost and Assistance Patients with ALS who Have Happiness and Freedom" (Japanese)
The 19th Annual Convention of the Japan Association for Bioethics, Section Meeting: Medical Economy and Bioethics, Taisho University

◆October 2007 "The Way of Right Advance Directive of People with Disabilities"
DPI Warera Jishin no Koe (Supplement of Special Topic of Policies)

◆October 6, 2007 "Home Care and Its System from the Viewpoint of ALS Patients' Family"
Seminar for Kanagawa Medical Care Practitioners

◆October 1, 2007 "Special Feature: Differences of Treatment of Incurable Diseases between Japan and Overseas- International Comparison of Economic Situation of Nursing, Caring and Patients"
Nanbyo to Zaitaku Kea October 2007 Vol.13 No.10, Japan Planing Center

◆September 2007 "After Seeing My Mother Died of ALS at Home" JALSA Organ Paper of Kinki Region of Japan ALS Association, October Issue, No.56

◆September 30, 2007 Contribution for Providing some Information for Symposium of Japan Society for Qualitative Psychology "Considering the Quality of Communication with ALS Patients"
(Information in Japanese)

◆ANDO Michihito, HOTTA Yoshitaro, KAWAGUCHI Yumiko & TATEIWA Shin'ya September 17, 2007 "Capability Approach in ALS", Conference of the HDCA(the Human Development and Capability Association ): "Ideas Changing History" September 17-20, 2007 in NY
For Details (http://www.capabilityapproach.com/pubs/AndoHottaKawaguchiTateiwa07.pdf)

◆SHIMOJI Masaki & KAWAGUCHI Yumiko September 16 & 17, 2007 "Economy and Ethics that Support Patients with ALS who Are Free and Happy" (Japanese)
The 4th Annual Conference of Japan Society for Disability Studies, Ritsumeikan University

KITAMURA Kentaro, KAWAGUCHI Yumiko & NAKAGUCHI Michiko September 16 & 17, 2007 "People with Incurable Diseases and Welfare/Medical Care Systems: Through Cases of Patients with ALS and their Families" (Japanese)
The 4th Annual Conference of Japan Society for Disability Studies, Ritsumeikan University

◆September 16, 2007 "Exhaustive Study of Japanese Welfare for People with Disabilities: Merits and Demerits of the Law for Supporting Independence of the Disabled, Integration Problems of Care Insurance(?) and Expectation of the Law that Prohibits Discrimination of the People with Disabilities"
Hitotsubashi University
For Details (http://www.home-care.ne.jp/net/themes/homecare/taikai/13tokyo/index.html) (Japanese)

◆September 15, 2007 Panel Discussion "What Is Requested Support Required Now?"
SITS2007 NEC Senior IT Support Forum in Odaiba & Tokyo International Exchange Center, Organizer: NPO Shinayaka Net

◆September 7, 2007 Report, DPI 7th World Assembly in Korea, Theme of Section Meeting "Euthanasia and Eugenics" 3:30 p.m. - 5:00 p.m.

◆August 2007 Report, Public Symposium "Cooperation of Nursing and Care in Support of Patients with Incurable Diseases"
Japan Intractbale Illness Nursing Society, Aomori University of Nuring

◆July 2007 "Report on Collaboration of Nursing and Care" Homon Kango to Kaigo, Igaku Shoin, 2007 Vol2-17

◆July 1, 2007 Chairperson of a Panel Discussion for Communication of Young Leaders of Patients' Groups
Convention of Japanese Patients' Academy, Tokyo

◆June 22, 2007 "Introduction of Music Therapy to Hospitals and its Challenges: Ingenuity and Ways for Providing Patients with Music Therapy"
Facilitator of General Discussion, The 4th Meeting for Considering Music Therapy for Patients with Intractable Neurological Disease, Sendai

◆May 20, 2007 "Upon Acceptance of the Model Business by Ministry of Health, Labour and Welfare"
The 1st Study Group of Action Research Project of Assistance of Severely Disabled Persons

◆May 1, 2007 "In ALS Families are also the Involved Persons"
Kangogaku Zasshi 71-5 (2007-5) (Reserved Seat for a Guest)
For Details (http://www.igaku-shoin.co.jp/prd/00147/0014720.html) (Japanese)

◆April 2007 "Check Points of Law for Support of Independence of People with Disability JALSA (Japanese) 71 cf.the Law for Independence Support of People with Disability in 2007 For Details (http://homepage2.nifty.com/ajikun/memo/jalsa200704.htm) (Japanese)

◆April 1, 2007 "International Evaluation and Position of Care of ALS in Japan"
Grants of Ministry of Health, Labour and Welfare, (Research Report of General Research Business on Overcoming Incurable Diseases by Group of "Research on Improvement of QOL of Patients with Specified Diseases")

◆April 1, 2007 "Problems on Long-time Care of such as ALS by Law for Support of Independence of People with Disability"
Grants of Ministry of Health, Labour and Welfare, (Research Report of General Research Business on Overcoming Incurable Diseases by Group of "Research on Improvement of QOL of Patients with Specified Diseases")
Law for Support of Independence of People with Disability in 2007 (Japanese)
For Details (http://homepage2.nifty.com/ajikun/memo/jiritsu2007.htm) (Japanese)

◆2005 "At a Village of ALS of WWW"
Gendai no Esupuri 458 Clinical Governance: The Human Relationship Shibundo pp34-42=March 31, 2007 Birth 1:46-51 (Reprinted)

◆March 2007 "From for me to for you"
Homon Kango to Kaigo Vol.12-3, pp 220-221, Igaku Shoin

◆March 10, 2007 Panel Discussion, Chair, Coordinator for "Cooperation between Care Staff and Medical/Nursing Staff"
Organizer: Study Group for Nursing Cosponsor: ALS/MND Support Center Sakura Kai and JALSA Chiba Branch

◆March 3, 2007 "What Is Dignified Death? Part 2"
Omiya Sonic Plaza

◆February 2007 "The Right to Die International Conferences Bring?"
Homon Kango to Kaigo 2007 Vol.12-2, Igaku Shoin

◆February 10, 2007 "Right to Live/Right to Die/Right of Patients"
Report of The First Kyoto Seminar for Study Group on Incurable Disease and Ethics Leaflet in Japanese (http://homepage2.nifty.com/ajikun/nanbyo_ethics_kyoto/nanbyo_ethics_kyoto1.pdf)

◆January 2007 "Various Ways to Appeal to Politics: Designing Care at Home No.2"
Homon Kango to Kaigo 2007 Vol.12-1, pp.46-47, Igaku Shoin

◆January 12, 2007 "Clinical Ethics Viewed by Families of Patients"
Lecture of Clinical Ethics (Medical Care and Society) of Intoroductory Course of Medical Care, School of Medicine, Fukushima Medical University

2006:
◆December 23, 2006 "Implementation of Palliative Care in Home-Care, Long-time Care by Personal Assistant System and Direct Payment"
Research Project to Overcome Intractable Diseases (Sponsored by Health, Labour and Welfare Ministry) "Research on QOL Improvement for Patients with Specified Diseases" (Abstract in Japanese (http://homepage2.nifty.com/ajikun/memo/qol2006_sakuramodel.htm))

◆December 13, 2006 KAWAGUCHI Yumiko, MATOBA Kazuko, KATAYAMA Tomoya, SATO Tatsuya & TATEIWA Shin'ya "Research on Palliative Care for Home Cared ALS Patients and their Family" (Full text in Japanese (http://www.zaitakuiryo-yuumizaidan.com/kawaguchiyumiko.pdf))

◆December 1-3, 2006 Identifying Care Elements for PALS Provided by Personal Assistants
International Symposium on ALS/MND in Yokohama
Abstract (http://homepage2.nifty.com/ajikun/memo/abstract2006.htm)

◆December 2006 "Designing Home-Care"
Homon Kango to Kaigo 2006 Vol.11-12:1124-1125

◆November 2006 "Sometimes We Get Tired: Movement of Patients and Involved People," Homon Kango to Kaigo 2006 Vol.11-11:1026-1027

◆November 29, 2006 "Sakura Model", a Project of Advancing the Personal Assistant System for PALS in Tokyo, Presentation for Allied Professionals' Forum, International Symposium on ALS/MND in Yokohama
Biography and Abstract (http://homepage2.nifty.com/ajikun/memo/apf2006yokohama.htm)
Presentation Draft (http://homepage2.nifty.com/ajikun/memo/apf2006scenario.htm)
(The International Symposium and International Alliance of ALS/MND Associations will be holding a one-day Allied Professionals' Forum in Yokohama on 29 November 2006. This seminar is specifically for allied health and social care professionals, and will be held between the International Alliance meeting (27-28 November) and International Symposium (30 November - 2 December).

◆KONAGAYA Momoe, KAWAGUCHI Yumiko, HASHIMOTO Misao & HAYASHI Hideaki, 26 November to 2 December, 2005 "A Reseach on Communication with Amytrophic Lateral Sclerisis (ALS) Parients in a Totally Locked-In State: Interviews with Caregivers" 18th International Symposium on ALS/MND, Dublin, Ireland 26 November to 2 December 2006
For Details (http://homepage2.nifty.com/ajikun/memo/dublinposter.htm)

◆November 25, 2006 "Training Course for ALS Caretakers: Evolving Care of Sakura-kai" The 12th Symposium of Visit Nursing Home Care Study Groups, Tokyo (Abstract in Japanese (http://homepage2.nifty.com/ajikun/memo/20061127.htm))

◆November 11-12, 2006 "The 4th Skill up Project: 'Evolving Care' Home Life of Ventilator Users" Independent Life Support Center Com-Support, Fukui Education Center

◆November 11, 2006 "Aiming for Disabled Children to Live in a Community with Medical Care" Medical and Education Study Group The 21st Open Seminar, Tsukuba University (Abstract in Japanese)

◆October 22, 2006 "Informed Consent for Putting On and Taking Off Ventilators" The 5th Japan Institute of Pharmacovigilance Seminar, Kansai University (Abstract in Japanese (http://homepage2.nifty.com/ajikun/memo/20061022.htm)) ◆October 2006 "The Possibility and Limitation of NBM"
Homon Kango to Kaigo 2006 Vol.11-10:952-953

◆September 2006 "Just Words Cannot Heal Patients"
Homon Kango to Kaigo 2006 Vol.11-9:878-879

◆August 2006 "On Collaboration Between Academics and Movements" Homon Kango to Kaigo 2006 Vol.11-8:780-781

◆KAWAGUCHI Yumiko & HASHIMOTO Misao August 25, 2006 "Narrative of Home-Cared ALS Patients About The Choice on Artificial Ventilator: The Role of Medical Professionals to Support the Patients' Survivability"
Report for Japan Intractable Illness Nursing Society, Sapporo Abstract in Japanese (http://homepage2.nifty.com/ajikun/memo/200608nanbyokango.htm)

◆August 6, 2008 "The Quality of Life (Quality of Death) and the Quality of Professionals: The Choice and Pass of People Involved in ALS and Reproductive Medicine" Symposium for Japan Society for Qualitative Psychology (Planner: Sato Tatsuya)

◆July 2006 "Training Course for ALS Caretakers: 'Evolving Care' For Cooperation between Professionals and Non-Professionals" Homon Kango to Kaigo 2006 Vol.11-7:694-695

◆June 2006 "Expansion of Medical Care and Home Care in Near Future" Special Feature: Medical Care in Life Fukushi Rodo 111:20-27

◆June 2006 "Does My Husband Decide about My Life?" Homon Kango to Kaigo 2006 Vol.11-6:600-601

◆June 11, 2006 "Our Movement for Independent Live, and Dignified Life that Is Decided by Ourselves" DPI Japan Meeting Osaka Brach 'Questioning the Weight of Life: Thoughts on Right to be Born and Survive", Sakai City
(Abstract in Japanese (http://homepage2.nifty.com/ajikun/memo/dpi2006.htm))

◆May 2006 "Enforcement of Article Law for Support of Independence of People with Disability" JALSA Vol. 67

◆KAWAGUCHI Yumiko & KITAMURA Kentaro May 2006 "Politics of Paralyzed and Paralyzing Body: Verifying the New System by Inspecting ALS Patients as the Severely Disabled Cared at Home" The Japanese Society of Health and Medical Sociology
(Abstract in Japanese (http://homepage2.nifty.com/ajikun/memo/20060611.htm))

◆May 2006 "Conflict over Law for Support of Independence of People with Disability" Homon Kango to Kaigo 2006 Vol11-5:504-505

◆April 2006 "Care for People Who Cannot Move Any Part of Their Body" Homon Kango to Kaigo 2006 Vol.11-4:392-393

◆April 8, 2006 "Ronten (The Point in Dispute)" Mainichi Shimbun April 8, 2006

◆March 2006 "Do We Need the Global Standard for ALS?" Homon Kango to Kaigo 2006 Vol11-3:296-297

◆March 2006 "Unlimited Support Is Provided for Your Existence" DPI A Voice Of Our Own Vol.21-3, Japan National Assembly of Disabled Peoples' International Newsletter

◆KAWAGUCHI Yumiko et al. March 2006 Report "Research on Situation and Needs of ALS Patients as the Severely Disabled Cared at Home," Research Project for Disabled Welfare, Sponsored by Health, Labour and Welfare Ministry 'Research on Efficient Support for the Severely Disabled who Are Cared at Home' pp49-122

◆February 2006 "Considering the Law for Caring Intractable Diseases in the Sky of Siberia" Homon Kango to Kaigo 2006 Vol.11-2:174-175

◆February 2006 "Multi-Culturalism with ALS" A report to Prof.Paul Dumouchel For Details (http://homepage2.nifty.com/ajikun/note/multiculturalism.htm)

◆January 2006 "Selfish I Am Unselfish I" Homon Kango to Kaigo 2006 Vol.11-1:54-55

◆January 8, 2006 Report "Advance Directive to Encourage ALS Patients' Survivability" Research Project to Overcome Intractable Diseases, Sponsored by Health, Labour and Welfare Ministry, "Research on QOL Improvement for Patients with Specified Diseases
(Abstract in Japanese (http://homepage2.nifty.com/ajikun/memo/ad20060110.htm))

◆January 8, 2006 Report "Consumer Insight of Long-term Ventilation Treatment for ALS Patients" Research Project to Overcome Intractable Diseases, Sponsored by Health, Labour and Welfare Ministry, "Research on QOL Improvement for Patients with Specified Diseases"
2005:
◆December 2005 KAWAGUCHI Yumiko et al. "The Limitation of Personal Assistant System through Severely Comprehensive Problems" Japan National Assembly of Disabled Peoples' International The 11th National Meeting for Policy on the Disabled (Abstract in Japanese (http://www.dpi-japan.org/event/051218-1.htm)

◆December 1 to 3, 2005 KONAGAYA Momoe, KAWAGUCHI Yumiko, HASHIMOTO Misao & HAYASHI Hideaki "A Research on Communication with Amyotrophic Lateral Sslerosis (ALS) Patients in a Totally Locked-in State: Interviews with Caregivers" 18th International Symposium on ALS/MND,Dublin,Ireland 26 November to 2 December 2006 For Details (http://homepage2.nifty.com/ajikun/memo/dublinposter.htm)

◆September 4, 2005 "The Catcher on the WEB : Find an ALS Patient's Story though the Internet", Dr. A. Frank's Symposium Japanese Version
For Details (http://homepage2.nifty.com/ajikun/note/the_catcher_on_the_web.htm)

◆KAWAGUCHI Yumiko et al. September 3, 2005 "Training Course for Caretakers of Daily Life Support by ALS Patients" Report for Japan Intractable Illness Nursing Society

◆KAWAGUCHI Yumiko et al. September 2005 "Visiting Care to Support Life of ALS Patients at Home"(Round Table Discussion) Homon Kango to Kaigo Vol.10-9:741-747

◆KAWAGUCHI Yumiko et al. September 2005 "About Practical Application of Automatic Sputum Aspirators" (Round Table Discussion) Homon Kango to Kaigo Vol.10-9:732-740

◆September 2005 "Wind from Oita: Visiting 12 Patients" Homon Kango to Kaigo 10-9:748-750

◆September 2005 "At the ALS Village of WWW" Critical Governance: Human Relationship to Tackle the Treatment Together" SATO Tatsuya et al. (eds.) Today's Esprit 458,pp

◆August 2005 "On Rather Varieties of Anti-Dignified Death" Kanja no tameno Iryo 11, Shinohara Shyuppan

◆July 2005 "Report on 'What is Dignified Death?' Meeting" Warera Jishin no Koe July 2005, Japan National Assembly of Disabled Peoples' International Newsletter

◆July 20, 2005 "ALS and its System: Law for Support of Independence of People with Disability Is Put before Lawmakers" JALSA 66 (Text in Japanese (http://homepage2.nifty.com/ajikun/jalsa/20050720jalsa66.htm))

◆June 25, 2005 "The Relationship between Social Situation Around ALS and Self-Decision" Anrakushi Songenshi Hoanka wo Soshisuru Kai Shiryoshu (Text in Japanese (http://homepage2.nifty.com/ajikun/memo/shinagawa20050625.htm))

◆June 10, 2005 "What Music Can Contribute to Intractable Diseases" Report, Musical Therapy for Nervous Disorder Study Group, Toba City (Abstract in Japanese (http://homepage2.nifty.com/ajikun/memo/20050610toba.htm))

◆June 5, 2005 "It's Impossible, It's Unreasonable" Symposium of Japan Council on Independent Living Centers, Tokyo (Abstract in Japanese (http://homepage2.nifty.com/ajikun/memo/jil20050605.htm))

◆June 1, 2005 "For Personality Who Requires Multi-Layered Level Supports" Nanbyo to Zaitaku Kea 11-4(2005-6):17-20 Japan Planning Center

◆May 15, 2005 "Choice of Ventilators Based on Narratives of Home-Care" The Japanese Society of Health and Medical Sociology, (Abstract in Japanese (http://homepage2.nifty.com/ajikun/memo/kumamoto20050515.htm))

◆April 23, 2005 "Missing Things" The 45 Study Group for Disability Studies at Kanto Branch

◆April 12, 2005 "Frail Decision Made by the Others" TATEIWA Shin'ya (ed.) For the Fight to Live Vol.1 'Future of Distribution and Support' Publishing Group (Text in Japanese)

◆April 12, 2005 "Standing By the Person Who Cannot Decide by himself/herself" TATEIWA Shin'ya (ed.) For the Fight to Live Vol.1 'Future of Distribution and Support' Publishing Group (Text in Japanese)

◆January 21, 2005 "Mercy Living rather than Mercy Killing" Warera Jishin no Koe Vol.20-4, Japan National Assembly of Disabled Peoples' International Newsletter (Text in Japanese (http://homepage2.nifty.com/ajikun/memo/dpi20-4.htm))

◆January 20, 2005 "ALS and its System: What Is Happening Now on Care Insurance and Support Fee System" JALSA 64 (Text in Japanese (http://homepage2.nifty.com/ajikun/jalsa/20041020_jalsa64.htm))

◆January 15, 2005 "How the System Should Support the Patients 'Zest for Living': Evolving Care of Sakura-kai" Training Course for ALS Caretakers, The 25th Seminars for Home Care Treatment, Tokyo Women's Medical University

◆January 14, 2005 "Halt of Ventilators by Self-Determination of Patients? From the Viewpoint of Patients' Associations" Fukushima Medical University Clinical Ethics

◆January 1, 2005 "Equality of Inspection" Research Note Gendai Shiso 33-01・005-01 (Article in Japanese (http://homepage2.nifty.com/ajikun/note/200412gendaishisou.htm))

2004:
◆December 19, 2004 "About Care Insurance and Support Fee System" (Representing Misao Hashimoto) The 10th National Meeting for Policy on the Disabled Panel Discussion "Perspective of Policies for Disabled People", Tokyo

◆December 12, 2004 "How the System Should Support the Patients 'Zest for Living': Evolving Care of Sakura-kai" Training Course for ALS Caretakers, Report for Research Project to Overcome Intractable Diseases, (Abstract in Japanese (http://homepage2.nifty.com/ajikun/note/2004qolsakurakai.htm))

◆December 1, 2004 "First, We Should just Speak Out" Book Review for ALS: Immovable Body and Breathing Machine Nanbyo to Zaitaku Kea 10-09(2004-12) Japan Planning Center (Text in Japanese (http://homepage2.nifty.com/ajikun/nanbyotozaikakucare/tateiwa2004b.htm))

◆November 1, 2004 "Humane Use of Artificial Ventilators" Gendai Shiso 32-14(2004-11):057-077

◆KAWAGUCHI Yumiko & HASHIMOTO Misao October 22, 2004 "Toward the Establishment of Network of Intractable Diseases by Involved Persons To Strengthen Their 'Zest for Living'" The 1st Meeting of Study Group of Network of Japan Intractable Diseases (Abstract in Japanese (http://homepage2.nifty.com/ajikun/200410.htm))

◆October 20, 2004 "ALS and the System: What Is Happening on Care Insurance and Support Fee System" JALSA 64:31-32 Text in Japanese (http://homepage2.nifty.com/ajikun/jalsa/20041020_jalsa64.htm))

◆August 1, 2004 "ALS and its System: What Is Happening on Care Insurance and Support Fee System" JALSA 63 Text in Japanese (http://homepage2.nifty.com/ajikun/jalsa/20040801.htm))

◆June 1, 2004 "My Daily Life with Totally Locked-In Mother" Nanbyo to Zaitaku Kea 10-03(2004-06):17-21 (Draft in Japanese (http://homepage2.nifty.com/ajikun/nanbyotozaikakucare/thewoodsarelovely.htm))

[Research Funds]
◆ "Research on an Effective Way of Assistance to Severely Disabled People at Home"
Member of Researchers of Group on ALS (Grants-in-Aid for Scientific Research, Ministry of Health, Labour and Welfare), Amount:2,700,000yen

◆ "Research on Improvement of QOL of Patients with Specified Diseases"
Cooperative Researcher (300,000yen)

◆ Research Project on Investigation of Assistance of Indepence of Persons with Disabilities in Fiscal 2007 (1)Development of Assistance Program in Severely Inclusive Parts of it and the Actual Condition Survey For Details in Japanese (http://www.mhlw.go.jp/topics/bukyoku/syakai/s-fukushi/index.html)

[Organized Conferences]
2008:
◆March 7-8, 2008 JALSA Training Course "Care Plan Using Law for Support of Independence of People with Disability" Organized by JALSA

◆January 26-27, 2008 National Expansion Project "Evolving Care" Research Project Sponsored by Health, Labour and Welfare Ministry, Organized by NPO Sakura-kai

2007:
◆March 11, 2007 "Symposium on Aspiration by Caretakers"

◆March 3, 2007 "What Is Dignified Death? Part 2" Co-organized by NPO Kurepasu and NPO Sakura-kai

◆February 2007 "Home Care System With Patients' Leadership and the Cooperation with Hospitals" Institute of Brain and Blood Vessels Mihara Memorial Hospital

◆February 10, 2007 "The Right to Live, The Right to Die, and the Rights of Patients" Organized by Medical Ethics for Intractable Illness Kyoto Seminar, Supported by Research Project to Overcome Intractable Diseases

2006:
◆November 11-12, 2006 "The 4th Skill Up Project 'Evolving Care' Home Life of Ventilator Users" Organized by Independent Life Support Center Com-Support

◆September 2, 2006 Combined Seminar with Prof. Morioka, Masahiro & Tateiwa, Shin'ya, Graduate School of Ritsumeikan University

◆April 29, 2006 "Seminar on Medical Treatment for Terminal Phase" With Tateiwa, Shin'ya & Shimizu, Tetsuro

2005:
◆October 2005 Study Session "About Peer Support" Organized by Public Health Department of Matsusaka-City, Mie Prefecture

◆October 21-22, 2005 Local Seminar "Let's Begin the Evolving Care in This Town" Training Project for ALS Daily Caretaker, Sponsored by 2004 Pfizer Supporting Citizen Movement for Health Care of Mind and Body Program

◆April 16, 2005 "What Is Dignified Death?" (Details in Japanese), (Seminar Document in Japanese (http://homepage2.nifty.com/ajikun/memo/euthanasia20050416.htm))

◆March 12, 2005 Local Seminar "Let's Begin the Evolving Care in This Town" 2004:
◆Training Courses for Caretakers, Organized by ALS/MND Support Center

◆December 12, 18, 2004 The 4th Session "Evolving Care: ALS and Life with Machine" (Detail in Japanese (http://homepage2.nifty.com/ajikun/sinkasuru_kaigo/2004121218nakano.htm))

◆August 21-22, 2004 The 3rd Session "Evolving Care: Job of Disabled People" (Detail in Japanese (http://homepage2.nifty.com/ajikun/sinkasuru_kaigo/machida.htm))

◆January 31, February 1, 2004 The 2nd Session "Evolving Care: For Understanding Basic Care Skill and the Disease of ALS Patients" (Detail in Japanese (http://homepage2.nifty.com/ajikun/sinkasuru_kaigo/nakano131.htm))



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