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■What's New

◆ NAGAOKA Hiroshi November 26, 2009 "Comfort of Death"

◆ Our collaborative research project with Japan ALS Association is introduced in the newsletter (Issue 26) of International Alliance of ALS/MND Associations.
http://www.alsmndalliance.org/

■Newspaper Articles

◆ December 7, 2009 "Doctors in Moral Dilemma with ALS" (The Japan Times)
http://search.japantimes.co.jp/cgi-bin/nn20091207a6.html

■Theme-related Events

◆ August 1-2, 2009 NEC Seminar to Support Communication of People with ALS/MND - Communication for Life
　at Ritsumeikan University


◆ The Forum for ALS Patients Treatment and Care, at Taipei Garden Hotel
　Tateiwa, Shin'ya June 20, 2009 Message (Chinese, Japanese)

◆ February 21, 2009 International Symposium"Research on Home Care of Patients with ALS in East Asia"
　at Ritsumeikan University


■Published Articles and Public Lectures on ALS etc.
Authored by the faculties and students of the Research Center of Ars Vivendi at Ritsumeikan University

◆ KAWAGUCHI Yumiko　December 15, 2009　Maybe she just wants to breathe，Igaku-Shoin，270p.　ISBN-10: 4260010034　ISBN-13: 978-4260010030　2100yen　［amazon］／[kinokuniya]


◆ KAWAGUCHI Yumiko & KONAGAYA Momoe (eds.) August 10, 2009 Pocket Guide of Using Ventilators at Home: Life and Support, Ishiyaku Shuppan, 212p. ISBN-10:4263235290 ISBN-13:9784263235294 2730


◆ TATEIWA Shin'ya August 10, 2009 "Decision of Ventilator?", Kawaguchi & Konagaya (eds.) Pocket Guide of Using Ventilators at Home: Life and Support, Ishiyaku Shuppan, 212p. ISBN-10:4263235290 ISBN-13:9784263235294 2730

◆ July 29, 2009 NPO in Kyoto Makes Handmade Censer-Switch to Support Severely Disabled People Living Independently Kyoto Shimbun Morning Edition:26


◆ TATEIWA Shin'ya June 20, 2009 "Message", The Forum for ALS Patients Treatment and Care, at Taipei Garden Hotel Chinese

◆ HOTTA Yoshitaro, ABE Akira, MATOBA Kazuko & ARIMA Hitoshi May 9, 2009 "The Importance of Social Support in Decision Making regarding Terminal Care: What ALS Patients in Japan can Teach us", Poster Presentation at 11th Congress of the EAPC, Vienna, Austria

◆ KAWAGUCHI Yumiko March 15, 2009 "Home Care of ALS Patients"
Report at Section Meeting of Japan Academy of Home Care, Osaka Prefecture University

◆ HASEGAWA Yui & HOTTA Yoshitaro March 14, 2009 "Problems on Supporting Incurable Disease Patients to Start Living Alone in Community," Kansai Area Meeting of Japanese Society of Health and Medical Sociology

◆ NAKAGUCHI Michiko March 14, 2009 "Challenges in Helping Patients with Intractable Diseases to Start Living within a Community - Leaving Hospital and Staying Home," Kansai Area Meeting of the Japanese Society of Health and Medical Sociology.

◆ ITO Kayoko March. 14, 2009 "On Supporting Patients in Need of Long-Term Care to Become Independent - A Case Study of Musculer Dystrophy Patients," Kansai Area Meeting of the Japanese Society of Health and Medical Sociology.

◆ NISHIDA Miki March 14, 2009 "Discussion of Mental Support for Patients with Intractable Diseases Who Live in Communities," Kansai Area Meeting of the Japanese Society of Health and Medical Sociology.

◆ HANDA Koichi & YAMAMOTO Shinsuke March 1, 2009 "Space ALS-D: Care x Dance x Buildings," The International Research Forum "Anthropology of Life Design and Well-being, Ritsumeikan University Kinugasa Campus

◆ NISHIDA Miki February 25, 2009 "Supporting a Single ALS Patient to Start Living Independently (1)" Ars Vivendi 1: 165-183

◆ HASEGAWA Yui February 25, 2009 "Supporting a Single ALS Patient to Start Living Independently (2): June 2008 Ars Vivendi 1:


◆ YAMAMOTO Shinsuke February 25, 2009 "Assistance of Transition of ALS Patients' Living Alone at Home (3): July 2008" Ars Vivendi 1: 201-217

◆ HOTTA Yoshitaro February 25, 2009 "Assistance of Transition of ALS Patients' Living Alone at Home (4)" Ars Vivendi 1:

◆ February 21, 2009 International Symposium"Research on Home Care of Patients with ALS in East Asia"

◆ KAWAGUCHI Yumiko February 1, 2009 "Expectation toward Care Establishing with Japanese Unique One, such as ALS Care" (Article in the Cover Stories) , Hoken no Kagaku February 2009, Vol. 51, Kyorin Shoin

◆ KAWAGUCHI Yumiko January 2009 "Challenges on Introduction and Limitation of Noninvasive Positive Pressure Ventilation for Home Cared ALS Patients: From the Positions of Patients, Families and Care Givers"

◆ MATSUBARA Yoko January 24, 2009 "Everyday Life with a Home Ventilator and Communication Aid Devices: A Case of Japanese Patient with ALS," Workshop on The Mechanization of Empathy in Health Care, Ritsumeikan University [abstract]

◆ HOTTA Yoshitaro January 24, 2009 "Between Medical Equipments and Home Appliances," Workshop on The Mechanization of Empathy in Health Care, Ritsumeikan University [abstract]/ [PowerPoint]

◆ NISHIDA Miki January 18, 2009 Lecture "Medical Care and Support for Users of Visiting Care for Severely Diseased Patients: Focusing on ALS Patients" Training Seminar organized by JCIL