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Nambyo: ALS etc. 2008

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Published Articles and Public Lectures on ALS
Authored by the faculties and students of the Research Center for Ars Vivendi of Ritsumeikan University

[1]KAWAGUCHI Yumiko, January 11, 2008 "Decision-Making About Medical Treatment - From the Family's Perspective," Invited Lecture at Fukushima Medical University, in Introduction to Medicine I, Clinical Ethics ("Medicine and Society"), at Medical School Lecture Room no.4.

[2]KAWAGUCHI Yumiko, 2008, Jan. 14, "Metaphors of ALS, A Survey of TLS (Totally Locked-in State) - from Our Experience of Home-Nursing People with Severe Communication Disorders," Public Lecture at Kyoto University Centennial Memorial Hall.
*Sponsored by Study Group for "Survey of the Ethical, Social, and Religious Impacts Caused by the Advanced Brain Science on Consciousness" (Project Leader, Fukuyama HIdenao (Kyoto University), Special Coordination Funds for Promoting Science and Technology by Ministry of Education).
*Co-sponsored by Study Group for "Making Most of Brain," http://www.cns.atr.jp/nou-ikasu/

[3]NAKAJIMA Takashi, interviewed by KAWAGUCHI Yumiko, February 1, 2008 "Regaining QOL and Palliative Care - Intengent Strategy in the Middle of Medical Catastrophe," Gendai Shiso 36-2 (2008, Feb.): 148-173.

[4]2nd Workshop for the Study Group on "Ethics and Intractable Disease," 2008, Feb. 2, Campus Plaza Kyoto.

[5]ANDO Michito, HOTTA Yoshitaro & KAWAGUCHI Yumiko, February 17, 2008 "On Disability and QOL - Welfare Assessment of ALS Patients on a Respirator," International Symposium for Identity and Alterity in Multiculturalism and Social Justice -"Conflicts," "Identity," "Alterity,""Solutions?".

[6]KAWAGUCHI Yumiko February 18, 2008 "How to Backup Home Nursing of People in Need of Medical Care," Second Training Workshop of Kanagawa Medical Care Worker, 10:15 - 10:45 pm, Tsurumi University Memorial Hall.

[7]KAWAMURA Sawako interviewed by KAWAGUCHI Yumiko March 1, 2008 "Geneology of Intractable Disease - from SMON to Home Mechanical Ventilation," Gendai-shiso, 36-3 (2008, Mar.): 171-191.

[8]KAWAGUCHI Yumiko, March 15 & 16, 2008 Discussant in the Panel "Assistance of Elderly People of High Degree of Dependence on Medicine," 12th Symposium of Japan Academy of Home Care, Tokyo.

[9]Sakura-kai ALS/MND Support Center (Incorporated Nonprofit Organization) March 31, 2008 Report, "Development of Support Program for ALS Patient under Home Care and Their Supporters by way of Utilizing the 'Comprehensive Support for Persons with Severe Disabilities'," Research Project for Survey of Disability Support Act, Program for the Promotion of Health and Welfare of Disabled Persons. 182p.

[10]KAWAMURA Sawako March 2008 "A Study on Effective Support for Severly Disabled People at Home," Grant Program for Science Research on Labor and Welfare, Comprehensive Research Project for Health and Welfare of Disabled Persons, Year 2007 Research Report. 155p.

[11]KAWAGUCHI Yumiko June 1, 2008 "Humane Use of Brain Machine - Politics and Economics About Connection and Continuation," Gendai Shiso 36-7(2008, Jun.): 98-111.

[12]KATSURAGI Teizo & KITAMURA Kentaro June 15, 2008 "Finance and Task of Shiga Liason Council for Intractable Disease (Incorporated Nonprofit Organization) - Its Relation to Shiga Prefectural Government," The 22nd Meeting of the Japanese Research Association for Community Development, Doshisha University.

[13]YAMAMOTO Shinsuke, NAKAGUCHI Michiko, HASEGAWA Yui, KITAMURA Kentaro & HOTTA Yoshitaro June 15, 2008 "A Survey of Support Project for ALS Patients to Stay Home (1) - A Study on the Improvement of Living Enviroment for Severe ALS Patients who Stay Home," The 22nd Anuual Convention for Japanese Research Association for Community Development, Doshisha University.

[14]HOTTA Yoshitaro, WATANABE Aiko, NAKAGUCHI Michiko, HASEGAWA Yui, YAMAMOTO Shinsuke & KITAMURA Kentaro June 15, 2008 "A Survey of Support Project for ALS Patients to Stay Home (2) - Understanding Needs of Care Based on Time Study of One Minute Times 24 Hours," The 22nd Anuual Convention for Japanese Research Association for Community Development, Doshisha University.

[15]NAKAGUCHI Michiko, HASEGAWA Yui, YAMAMOTO Shinsuke, KITAMURA Kentaro & HOTTA Yoshitaro June 15, 2008 "A Survey of Support Project for ALS Patients to Stay Home (3) - Difficulties of Transition to Staying at Home," The 22nd Anuual Convention for Japanese Research Association for Community Development, Doshisha University.

[16]HASEGAWA Yui, NAKAGUCHI Michiko, YAMAMOTO Shinsuke, KITAMURA Kentaro & HOTTA Yoshitaro June 15, 2008 "Research Study on Assistance of Transition of ALS Patients' Living Alone at Home (4) - Institutional Issues," The 22nd Anuual Convention for Japanese Research Association for Community Development, Doshisha University.

[17]Sakura-kai, "Evolution of Care," August 19 & 20, 2008, Space ALS-D

[18]Training Workshop for Home Nursing August 27 & 28, 2008, Soshikan Building, Ritsumeikan University

[19]KAWAGUCHI Yumiko August 30, 2008 "Current Status of the Care for ALS Patients in Japan - How to Support the Aging Patients Who Live Alone and Their Caretakers," The 13th Meeting for the Japan Intractable Illness Nursing Society, Tower Hall Funabori.

[20]MAEKAWA Chieko August 30, 2008 "The Future of Mental Care of Patients with Neurological Intractable Disease who Stay Home - From the Perspective of Clinical Psychotherapists and Health Nurses," The 13th Meeting for the Japan Intractable Illness Nursing Society, Tower Hall Funabori.

[21]NISHIDA Miki, August 30, 2008 "A Case Study of ALS Patients Who Have Difficulty with Living Home Alone - Support Based on Narrative Approach," The 13th Meeting for the Japan Intractable Illness Nursing Society, Tower Hall Funabori.

[22]HASEGAWA Yui, TAKABAYASHI Yayoi, NISHIDA Miki, YAMAMOTO Shinsuke, HOTTA Yoshitaro & KAWAGUCHI Yumiko August 30, 2008 "A Case Study of ALS Patients Who Have Difficulty with Living Home Alone - From the Perspective of Social Welfare," The 13th Meeting for the Japan Intractable Illness Nursing Society, Tower Hall Funabori.

[23]NAKAGUCHI Michiko August 30, 2008 "Living with ALS - Difficulties with Starting to Stay Home," The 13th Meeting for the Japan Intractable Illness Nursing Society, Tower Hall Funabori.
Mr.S' photos.

[24]MAEKAWA Chieko, September 4-7, 2008 "Psychological Clinic for Patients of Intractable Disease - Alignments and Communal Clinical Activities regarding Medicine, Health and Welfare," The 27th Meeting of the Association of Japanese Clinical Psychology, Tsukuba International Congress Center.

[25]TATEIWA Shin'ya, September 7, 2008 "Amyotrophic Lateral Sclerosis (ALS) and Artificial Respirator" (The title was given by the organizer of the meeting), The Meeting of the Japanese Society for Clinical Thanatology, Sapporo.

[26]TATEIWA Shin'ya September 14, 2008 Public Lecture, "To Support Home Care, If You are Willing to," Clinic in Support of Home Care (Incorporated Nonprofit Organization) / Citizen's National Network, "Meetings Across the Nation" in Kyoto, Doshisha University.

[27]Symposium "Soverignty of the Involved People," September 15, 2008 Clinic in Support of Home Care (Incorporated Nonprofit Organization) / Citizen's National Network, "Meetings Across the Nation" in Kyoto, Doshisha University.
TATEIWA Shin'ya: Chairperson, KAWAGUCHI Yumiko: Commentator



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