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Not Dead Yet

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児玉 真美 2014/10/25 「Not Dead Yet と Second Thoughts から Byock医師への賛同声明」
 http://blogs.yahoo.co.jp/spitzibara2/64326894.html

児玉 真美 2013/08/13 「NDYのDian Colemanによる自殺幇助合法化批判」
 http://blogs.yahoo.co.jp/spitzibara/66619875.html

◆2009/08/11 Peter Singer in NY Times Magazine: Disability Community Responds!
 Not Dead Yet News Commentary, Tuesday, August 11, 2009
http://notdeadyetnewscommentary.blogspot.com/2009/08/peter-singer-in-ny-times-magazine.html

◇Singer, Peter 2009/07/15 "Why We Must Ration Health Care", New York Times Magazine, July 15, 2009

■HPより

 「Not Dead Yet(NDY・「まだ死んでない」)は、幇助された自殺と安楽死を合法化する運動に反対するために作られた、草の根の障害者の権利のためのグループです。」

■言及

◆市野川 容孝・立岩 真也 1998/02/01 「障害者運動から見えてくるもの」(対談),『現代思想』26-2(1998-2):258-285→立岩『弱くある自由へ』(青土社,2000)に収録

 「ただ、いま市野川さんがおっしゃったような障害者自身の動きっていうのはナチズムを体験したドイツ以外にはないかっていうと、やっぱりあるんですよ。たとえばこの前、アメリカのNCIL(全米自立生活センター協議会)、それなりに大きな組織だけれども、その事務局長に話を聞いたんだけど、出生前診断については、「うーん…」っていう感じで、組織として反対するっていうことはやってないというかできてないというか、でも少なくともよいものだとか、当然だという受け止め方ではなかった。それから安楽死のことね。医師の幇助のもとでの自殺としての安楽死に関しては、組織として反対の声明を出してるって言ってました。これって自己決定でしょ、ある意味では。もし彼らが自己決定ってことだけを旗印に闘っていたんだとすれば、ある種矛盾するかもしれないことでしょ。だけどもっとも強力に自己決定を主張してきたアメリカの当事者たちにしてもね、やはり医師の幇助による安楽死に対しては、反対しているということがある。」

◇National Council on Disability
 http://www.ncd.gov
◇Not Dead Yet
 http://acils.com/NotDeadYet/
◇World Institute on Disability
 http://www.igc.apc.org/wid/
◇National Council on Independent Living(NCIL)

◆立岩 真也 20041115 『ALS――不動の身体と息する機械』,医学書院<,449p. ISBN:4260333771 2940 [amazon][kinokuniya]

 「安楽死に反対する人たちは外国にはいないのかといえば、そんなことはない。そして反対者はカトリックなどの宗教的生命尊重主義者たちに限られるかと言えばそんなこともない。例えば米国には『まだ死んでない(Not Dead Yet)』(http://acils.com/NotDeadYet/)というホームページがあり、次のようなことが書いてある。《障害をもつアメリカ人は、あなた方の憐れみもいらないし、私たちを死に追いやる慈悲もいらない。私たちが欲しいのは自由だ。私たちが欲しいのは「生」だ。》。また探してみると、「反安楽死国際機動部隊(International Anti-Euthanasia Task Force)」(http://www.iaetf.org/)などという組織もあるらしい(私のホームページですこし紹介している)。
 こうした組織がどれほどの規模のものなのか、またどのくらいの影響力があるのか私は知らない。大きな組織だとは思えない。論文や書籍で紹介されているのを見たことはない(そんなわけで私は、二〇〇一年二月、NHK教育テレビ〈人間ゆうゆう〉の「安楽死法成立・あなたはどう考える」という回に呼んでもらった時、こうした組織のことを無理やり、短い時間に押し込んで話した)。ただ、生きたい人はどこにでもいるということだ。日本で生きているALSの人たち外国の会議に出かけていって、そのことを言ってきた。そして二〇〇六年の国際会議の横浜での開催が実現することになった。静山社の松岡祐子は開催のために三〇〇〇万円を寄付した(『JALSA』56:1)。この会議の時にまた、この国のALSの人たちは呼吸器を付けて生きることを言うだろう。」(p.341)

■HPより(部分訳:立岩真也

「Americans with Disabilities don't want your pity or your lethal mercy, We want freedom. We want LIFE.
 URGENT NATIONAL ALERT!
 Not Dead Yet to confront International Euthanasia Groups Meeting in Boston Massachusetts, Labor Day Weekend, September 2, 2000. Click Here To See How You Can Participate」
 lethal=致死性の

 「障害をもつアメリカ人は、あなた方の憐れみもいらないし、私たちを死に追いやる慈悲もいらない。私たちが欲しいのは自由だ。私たちが欲しいのは「生」だ。……」


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Who Are we and why are we here!! Read Not Daed Yet, The Resistance

You might be under the impression that assisted suicide advocates only want to give this "right" to the terminally ill. The history and actions of tell a different story. The REAL Hemlock Society
あなたは自殺幇助を擁護している人たちはただ末期の病者にこの「権利」を与えようとしているだけだという印象をもたれているかもしれません。しかしその歴史と実際の行いの数々を知れば、それはまったく違うことがわかります。「<本当の>ヘムロック協会」
The REAL Hemlock Society = http://www.notdeadyet.org/hemlock.htm(↓)

For our analysis of the alleged safeguards in the proposed assisted suicide bills. Click Here(↓)

Not Dead yet is joined by Eleven other members of the disability community who OPPOSE the legalization of assisted suicide. Read The List.(↓)
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The REAL Hemlock Society = http://www.notdeadyet.org/hemlock.htm(↓)

 その内容は以下です。(200102)

The REAL Hemlock Society

(Note - The Hemlock Society in the United States has been in existence for 17 years and has an estimated 25,000 members. It is the oldest organization of its kind on this continent and therefore deserves special attention in regard to just what its leaders have been advocating in regard to euthanasia - as it turns out, the words and actions of Hemlock leaders often indicate a more radical agenda than the public stance of the organization itself. This agenda is also evident in the beliefs of its membership. In a survey that Hemlock distributes, over 80% of the members support the extension of the "right to die" to the "hopelessly ill". Below are some clues as to what that term means to Hemlock members.)

「…会員の80%が「死ぬ権利」を<希望のない病者>に拡張することを支持している。……」

Dori Zook, Hemlock Society public relations director, claimed in a recent internet message that Hemlock supports legalization of physician- assisted death only in cases of terminal illness. And Hemlock's website asserts that the Society favors physician-assisted suicide strictly for someone "who is already in the dying process." But there is a glaring discrepancy between this official stance and what prominent members of Hemlock have said and done.

For example, there is this little gem from Hemlock co-founder Derek Humphry's book, Final Exit:

Or take the actions of Hemlock leaders in the case of Elizabeth Bouvia. Writing about the Bouvia case, Humphrey expressed Hemlock's support of the right to voluntary euthanasia for "a person terminally ill, or severely handicapped and deteriorating...." Hemlock Quarterly 14 (1984). But Ms Bouvia was not "deteriorating." Cerebral palsy is not degenerative. The open-ended term "deteriorating" can be made to mean almost anything in order to justify a disabled person's suicide.

Bouvia's lawyers, led by Richard Scott, another co-founder of Hemlock, distorted the nature of her disability, likening her to a terminal patient. "Were Plaintiff Bouvia an 84-year-old woman whose life was prolonged solely by various tubes and numerous machines," they argued in the Riverside Superior Court, "and she sought to end such an existence, it is doubtful that this Court would even be involved....Plaintiff should not be denied that same right merely because she is 26 years of age and does not yet require a machine or machines (other than her wheelchair) to prolong her pitiful existence." Plaintiff's Memorandum, Bouvia v. Riverside County, 14.

A wheelchair is not a life-prolonging machine, nor will Bouvia's cerebral palsy ever require her to use such machines. Advocates of assisted suicide prejudicially twist the facts of disability to make their case.

「車椅子は延命装置ではないし、またBouviaの脳性麻痺はそんな装置を使う必要もない。」

Bouvia had been through a series of devastating ordeals in the two years preceding her request for help in ending her life: The graduate program in social work at San Diego State University violated her federally protected civil rights. Bouvia dropped out of school, and the state Dept. of Rehabilitation repossessed her wheelchair-lift-equipped van. (Instead of urging her to fight this discrimination, Richard Scott declared publicly: "Quadriplegics cannot work.")

Meanwhile, she married and kept her marriage secret from social- welfare authorities in order not to run afoul of the "marriage disincentives" that would have cost her her essential financial aid. She got pregnant, had a miscarriage, separated from her husband, decide to divorce him, and learned that her brother had drowned and that her mother had cancer.

「Bouviaは、彼女の生を終わらせる助けを求める前の2年間、ずっとひどい試練にさられていた。……」

At this point, Bouvia checked herself into the psychiatric unit of Riverside County Hospital and said she wanted help to die.

Scott brought in a doctor, a psychiatrist, and an educational psychologist to evaluate Bouvia. Bouvia reported to them the emotionally devastating experiences of the preceding two years. She also said she wanted to die because of her disability. Ignoring all of the emotional blows and discrimination, they concluded that because of her physical condition she would never be able to achieve her life goals, that her disability was the sole reason she wanted to die, and that her decision for death was reasonable. The psychologist was Faye Girsh, the current president of the National Hemlock Society.

「……彼女はまた彼女の障害ゆえに死にたいのだと言った。感情面での打撃や差別をすべて無視して、彼らは、彼女の身体的な状況のために彼女はけっして彼女の人生の目標を達成することができないだろうと結論づけた……。」

More recently, there is this from Janet Good, past president and founder of the Michigan Hemlock. Good has also attained some notoriety by collaborating with Jack Kevorkian in ending the lives of some individuals with nonterminal disabilities.

 「苦痛が死を望む主要な理由なのではありません。それは尊厳が失われることにあるのです。他の人の助けなしに、自動車を運転したり買物に行ったりすることできないのはもちろん、ベッドから出たりトイレに行ったりできないことにあるのです。……「私の母や夫がおしりをふくのに耐えられない。」これが、この運動で誰もが尊厳を語る理由なのです。人にはプライドがあります。…」

Many people with disabilities need such assistance in the bathroom, assistance which they are in charge of and which they do not regard as undignified. It's a dying shame that Ms. Good doesn't convey a more respectful attitude toward her "clients." Instead she reinforces and lethally acts out the devaluing attitudes of our society that tell sick or disabled people they lack dignity because they need assistance with basic activities of daily living, and would be better off dead.

多くの障害者はそういう手助けを必要としている。… 

Have we really gotten to the point in this country that we will sanction and abet the suicides of people because they can't wipe their own behinds? people who have internalized society's contempt as self-hatred? That Janet Good thinks this justifies facilitating suicides shows what little progress we have made in rooting out disability prejudice.

Ms Good's colleague, Jack Kevorkian, openly expresses even greater contempt for sick and disabled people. He sees us as a drain on society. He told a Michigan Court in August 1990: "The voluntary self-elimination of individual and (sic) mortally diseased and crippled lives taken collectively can only enhance the preservation of public health and welfare."

Jack Kevorkianは…私たちを社会を枯渇させるものだと見ている。彼は1990年8月にミシガンの法廷で語った「個人のそして(ママ)死に至る病人やかたわの生命を自発的に自ら断つことは公共の健康と富の保有量を増すことができる…。」

If Hemlock's leaders really oppose prejudice against people with disabilities, they must publicly denounce Jack Kevorkian's bigotry.

もしヘムロックのリーダー達が本当に障害者に対する偏見に反対するのなら、彼らは公的にJack Kevorkianの偏狭さを公に非難しなくてはならない。

The statements and actions noted above are neither stray, nor taken out of context. RTD leaders, time after time, have demonstrated the same willingness to promote this final "solution" to the problems of people with disabilities. Taken together, these words and deeds mark a clear and consistent pattern of promoting assisted suicide for people with disabilities.

Why, then do RTD leaders now claim to advocate a narrower application of assisted suicide? Perhaps they tailor their message depending on the immediate political climate and who they think is listening. For the benefit of all of us who are listening, we call on Hemlock, its leaders, and allies to come forward with boldness and honesty to clearly state their complete agenda.


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◆PROPOSED ASSISTED SUICIDE "SAFEGUARDS"
 Click Here = http://www.notdeadyet.org/docs/ndysafeguards.html

 その内容は以下です。(200102)

PROPOSED ASSISTED SUICIDE "SAFEGUARDS"

The following comments on the "safeguards" contained in proposed bills and referenda to legalize assisted suicide highlight their universal failure to provide meaningful protections against abuses.

幇助される自殺を合法化しようと提案されている法案や住民投票の案に含まれる「安全装置」についての以下のコメントは、侵害に抗する意味ある防御を提供できないことを強調している。

Information About "Feasible Alternatives." This "safeguard" provides that the physician must first inform the patient about "feasible alternatives, including, but not limited to, comfort care, hospice care, palliative treatment, and pain control." There is no requirement that these services actually be paid for and made available to the individual in any version of these bills and referenda. Nor is there any requirement that home health services be provided that would relieve demands on family members and ease the patient's feelings of being a "burden." Under the proposed laws, "choice" is an empty slogan.
「実現可能な他の選択肢」についての情報。…どの法案や住民投票でも、これらのサービスが、実際に、予算がつけられ利用できるようにすることは求められていない。……提案されている法のもとでは「選択」は空虚なスローガンでしかない。


The Professional Consultations. Two consultations are required under this "safeguard," one to establish that the condition is "terminal," the other to establish that the patient's request is "voluntary" and "informed," or that it is not the product of "impaired judgment" caused by a diagnosed mental illness. The life experiences of people with disabilities are filled with evidence of the unreliability of medical and professional opinions about either physical or psychological issues. Many of us were expected to die, but lived---and lived to enjoy life with our disabilities. Numerous research studies demonstrate that physicians consistently and dramatically underestimate our "quality of life" compared to our own assessments. In several highly publicized "right to die" court cases involving people with non-terminal disabilities, psychiatrists and psychologists have incorrectly concluded that the individual's suicidal despair was permanent and untreatable. None of the proposed standards address the realities of the most prevalent, but subtle, forms of social coercion.
専門家による相談・助言。
The "Good Faith" Standard. This "safeguard" provides that no person will be subject to any form of legal liability if they participate in "good faith." A claimed "good faith" belief that the requirements of the law are satisfied is virtually impossible to disprove, rendering all other proposed "safeguards" effectively unenforceable and legally immunizing all participants.
「誠実」という基準。

In practical effect, the proposed laws would secure civil and criminal immunity for physicians and other participants in assisted suicide or euthanasia: a few forms in the medical chart, no questions asked. On balance, the risk these bills pose to the many outweigh any alleged potential benefit to a few.
実際上の効果としては、提案されている法律は 幇助された自殺あるいは安楽死に加担する医師などの民事そして刑事上の免責を保証することになる。…


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The List = http://www.notdeadyet.org/docs/ndyopposed.html

 その内容は以下です。(200102)

◆American Disabled for Attendant Programs Today (ADAPT) - ADAPT advocates for the civil rights of people with disabilities, old and young, to receive long term care services in the community instead of being warehoused in nursing homes and institutions.

◆Association of Programs for Rural Independent Living (APRIL) - APRIL is the national association of centers for independent living, statewide independent living councils, and other organizations working with people with disabilities living in rural areas.

◆Disability Rights Education and Defense Fund (DREDF) - DREDF is the leading force in education and legal enforcement of the ADA and other laws that prohibit discrimination based on disability.

◆Justice For All - Justice For All and its extensive email network were formed to defend and advance disability rights and programs in the U.S. Congress.

◆National Council on Disability - The National Council on Disability (NCD) is an independent federal agency making recommendations to the President and Congress on issues affecting 54 million Americans with Disabilities.

◆National Council on Independent Living - NCIL is the national association of hundreds of consumer-controlled Centers for Independent Living, non-residential grassroots advocacy and service organizations operated by and for people with disabilities.
 (全米自立生活協議会)

◆National Spinal Cord Injury Association - The National Spinal Cord Injury Association is an international nonprofit organization for people living with spinal cord injury. Their mission is to enable people with spinal cord injuries to make choices and take actions so that they might achieve their highest level of independence and personal fulfillment.
(全米脊髄損傷協会)

Not Dead Yet - NDY is a grassroots disability rights group formed to oppose the movement to legalize assisted suicide and euthanasia.
Not Dead Yet(NDY・「まだ死んでない」)は、幇助された自殺と安楽死を合法化する運動に反対するために作られた、草の根の障害者の権利のためのグループです。

◆TASH - TASH is a civil rights organization for, and of, people with mental retardation, autism, cerebral palsy, physical disabilities and other conditions that make full integration a challenge.

◆World Association of Persons with Disabilities - WAPD advances the interests of persons with disabilities at national, state, local and home levels.

◆World Institute on Disability - WID is an international public policy center dedicated to carrying out cutting-edge research on disability issue and overcoming obstacles to independent living. It was founded by Ed Roberts, the "father" of the independent living movement.


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