Trisomy 18:
Aiming at Better Medical Care and Family Suport for Children

■SAKURAI Hiroko, HASHIMOTO Yoko & KOSHO Tomoki (Eds.) December 1, 2014　Trisomy 18: Aiming at Better Medical Care and Family Suport for Children，Medicus Shuppan, 218p.　ISBN-10: 10:4840453144　ISBN-13:978-4840453141　3,800 yen + Tax [amazon]／[kinokuniya]

■Contents

This Is a Long-awaited Book for Families who Have Children with Trisomy 18 and Staff in Charge of Neonatal Medicine
Concerning Trisomy 18, its treatment policy varies depending on institutions--palliative care or active treatment. Recently, however, a form of medical care which stays present to children's fortitude to live can be seen with reports of children who are out of the hospital and feel enriched among family members. This book is a handbook for medical management, family support, rehabilitation and home care.

■Table of Contents

Chapter I In Order to Understand Trisomy 18
（1） Medical Evidence concerning Trisomy 18
（2） Evidence concerning Feelings of Families who Have Children with Trisomy 18
（3） What Parents Expect for Perinatal Care
（4） From the Viewpoint of "Psychological Care"
（5） Medical History concerning Trisomy 18
（6） Neonatal Medicine and "Guidelines of Discussion"
（7） Past and Future of "Trisomy 18 Support Group"

Chapter II The Actual Condition of Medical Examination
（1） Management in Obstetrics
（2） Neonatal Intensive Care (NIC)
（3） Response to Heart Disease
（4） Response to Surgical Diseases
（5） Response to Epileptic Stroke
（6） Response to Skeletal Anomaly
（7） Response to Audiovisual Symptom

Chapter III Comprehensive Support of Development and Health
（1） Growth/Development of Children with Trisomy 18 and Comprehensive Health Management Guidelines
（2） Feeding Instruction
（3） Care to Children and Their Families
（4） Rehabilitation Support
（5） Vertical Support to Children and Their Families　1) Doctor System in Charge of an Unborn Baby
（6） Vertical Support to Children and Their Families　2) Psychological Support from during Pregnancy to at Home
（7） Vertical Support to Children and Their Families　3）Welfare Support/Home Support
（8） Vertical Support to Children and Their Families　4）From the Viewpoint of Family
（9） With Families and Through Connection with the Society

Chapter IV Psychological Support and Genetic Counseling
（1） Psychological Support to Families
（2） Genetic Counseling concerning Trisomy 18
（3） Having Genetic Counseling From the Viewpoint of Parents

Chapter V Approarches of Institutions
（1） Dokkyo Medical University　　Past 10 Years and from now on
（2） The University of Tokyo Hospital　　In Anticipation of Transition ro Home Care
（3） Tokyo Metropolitan Bokutoh Hospital　　Utilizing the Network of Graduates of NICU
（4） Japan Red Cross Medical Center　　Necessity of Accumulating Know-hows across Institutions
（5） Shiga Medical Center for Children　　Supports from "Medicine" and "Rehabilitation"
（6） Takatsuki General Hospital　　Considering with Families
（7） Kansai Medical University Hirakata Hospital　　Toward Improvement of Average Survival Period by Palliative Cardiac Operation
（8） Osaka Medical Center and Research Institute for Maternal and Child Health　　Effectiveness of Nasal Airway for Respiration Disorder
（9） Kurashiki Central Hospital　　Changes of Treament/Care--Forms of Each Medicine
（10） Okinawa Prefectural Chubu Hospital　　Let Children Live Their Own Life through "Yuimaru"Spirit

Column Feelings for Children of Members of Trisomy 18 Support Group　From members of Trisomy 18 Support Group

・Index
・Afterword