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■KITAMURA Kentaro September 30, 2014　The History of Hemophiliacs in Japan: Hospitality of Otherness/Participation in Society/Protest Movements，Seikatsu Shoin, 304p.　ISBN-10: 4865000305　ISBN-13: 978-4-86500-030-6　3000 yen＋tax　[amazon]／[kinokuniya]

■Contents

Starting from the existing impairment/illness which cannot be separated from individual body easily, the author describes issues in the modern society.

In this book the author discusses the history of hemophiliacs and association for hemophilia/hemophilia community from the late 1960s to 1980s, and he develops his disucssion, with hemophiliacs at the core, toward various themes including medical technologies, public expenditure, school education, mass media, eugenic thoughts, and the issue of infectious diseases. The author plays an active role in reexamining the society viewed from hemophilia, not dealing with hemophilia as some concrete example.

■Table of Contents

Dedication

Introductory Chapter　Questioning the History of Association for Hemophilia/Hemophilia Community
1　Questioning the History of Association for Hemophilia/Hemophilia Community
2　Basic Viewpoint of This Book
3　Basic Concept of This Book and Distinction of Periods
4　Outline of the Proximity Area and Limitation of Research on the Harmful Effects of Medicines
5　Explanation of Terms in This Book

Prehistory　Hemophiliacs who Lived before/during the War
1　Introduction
2　Hemophiliacs who Found Employment before the War
3　Hemophiliacs who Were Inducted
4　Hemophiliacs who Suffered Air Raids
5　Conclusion

Part I　Appearance of Coagulation Factor Products and Establishment of Japan Hemophilia Fraternal Association
Chapter 1　Appearance and Spread of Coagulation Factor Products: Hemophilia and Medical Technology（1940-）
1　Introduction
2　Development of Blood Supply in Japan
3　Insistence of Promotion of Blood Donation
4　Grand Transformation of Treatment for Hemophilia
5　Problem Awareness of Pharmaceutical Companies and Doctors
6　Introduction of "Home Infusion"
7　Diet Deliberations since Reischauer Incident
8　Contradictions Made by Cabinet Decision
9　Conclusion

Chapter 2　Establishment of Japan Hemophilia Fraternal Association: Hemophilia and Public Health Coverage（1967-1974）
1　Introduction
2　Development of Patient Movements and Measures against Intractable Diseases
3　Establishment of Japan Hemophilia Fraternal Association
4　Start of Public Health Coverage
5　The Barrier of Age Limit
6　Formation of Treatment and Research for Specified Children's Chronic Diseases
7　Background of Formation of Public Health Coverage
8　Conclusion

Chapter 3　The Affair of Urawa High School’s Unjustified Refusal of Entrance to Akahito Onishi: Hemophilia and School Education（1971）
1　Introduction
2　The Next Stage of Education and Employment of Hemophiliacs
3　Before the Affair of Urawa High School
4　Confrontation concerning School Reports: The Affair of Urawa High School (1)
5　Formation of a Group for Fulfillment of "Disabled People’s Educational Rights" and Response of the Media: The Affair of Urawa High School(2)
6　Rejection of Special Appeal and Passing of University Entrance Qualification Examination: The Affair of Urawa High School(3)
7　Conclusion

Part II　Birth of Young Hemophiliac Club and the Sabita Honoo (Rusty Flame) Problem
Chapter 4　Birth of Young Hemophiliac Club: Rise of Young Hemophiliacs（1973-1976）
1　Introduction
2　Leaflet "Get Together, the Young!"
3　Individual Difference and Regional Difference Seen in Matsushima Brothers
4　Holding of "Gathering of the Youth"
5　Formation of Young Hemophiliac Club
6　Intercommunion between Matsushima Brothers and YHC
7　Anticipation toward "Home Infusion"
8　Conclusion

Chapter 5　The Sabita Honoo (Rusty Flame) Problem/The Blackjack Problem: Hemophilia and Mass Media（1977/1981）
1　Introduction
2　The Sabita Honoo (Rusty Flame) Problem
3　Position of Protest and Counterargument
4　Arguement on Different Planes
5　End of Protest Movements
6　Achievement and Limitation of Protest Movements
7　The Blackjack Problem
8　Conclusion

Chapter 6　Restructuring of Young Hemophiliac Club: New Body of Hemophiliacs（1978-1979）
1　Introduction
2　Restructuring of YHC
3　Gap between YHC and Japan Hemophilia Fraternal Association
4　Body which Enables a Person to Make a Journey Alone: Amino Camp (1)
5　Sociality of Hemophiliacs which was Questioned: Amino Camp (2)
6　Variation of the Boundary of Possible/Impossible Scope
7　After the Movement of Abolishing the Age Limit
8　Conclusion

Part III　Development of Japan Hemophilia Fraternal Association and the AIDS Problem
Chapter 7　Development of Japan Hemophilia Fraternal Association: Hemophiliacs and "Home Infusion" by Hemophiliacs（1975-1982）
1　Introduction
2　Holding Fraternal Night
3　Lecture of Dr. Dietrich
4　Monitoring Board of the Publication of Japan Hemophilia Fraternal Association
5　Chairperson Kitamura Goes to the U.S. by Himself
6　Meetings with Dr. Takemi, Chair of Medical Association and Hashimoto, Minister of Health and Welfare
7　Publication of a Medical Book Hemophilia
8　Conclusion

Chapter 8　The Shinsei na gimu (Sacred Obligation) Issue: Hemophilia and Eugenic Thoughts(1980）
1　Introduction
2　Prenatal Diagnosis Seen in Magazines “ZENYU”
3　The Shinsei na gimu (Sacred Obligation) Issue and Its Background
4　Criticism against Watanabe
5　Responses of the Side of Hemophiliacs
6　Difficulties of Counterargument of the Side of Hemophiliacs
7　Differences between Hemophiliacs and Aoi shiba (Green Glass)
8　Conclusion

Chapter 9　Legalization of "Home Infusion" and Revision of Amount Limit of Major Medical Expense Supply: Outcome of Hemophiliacs（1983-1984）
1　Introduction
2　Legalization of "Home Infusion" by Hemophiliacs and Their Family
3　1970s for Hemophiliacs in Japan
4　Collapse of "Bright Future"
5　Revision of Amount Limit of the Major Medical Expense Supply
6　Conclusion

Chapter 10　Stop of Japan Hemophilia Fraternal Association: Hemophilia and the AIDS Problem（1985-1989）
1　Introduction
2　Approval of Heated Coagulation Factor Products
3　Hemophiliacs who Stand up
4　Response concerning the 20th National Convention
5　Assumption of Office of Chairperson Nomura
6　Fight with the Bill of Prevention of AIDS
7　Conclusion

Final Chapter　Questions Led by the History of Association for Hemophilia/Hemophilia Community
1　From the Summary of the 1st Term to Discussion of the 2nd Term
2　Historical Significance of the Sabita Honoo (Rusty Flame) Problem
3　Divided and Broken Line of Association for Hemophilia/Hemophilia Community
4　Questions Led by the History of Association for Hemophilia/Hemophilia Community
5　Resisting Oblivion of 1970s

Addendum 1　 Discrimination Brought by the Special Measures Law of Hepatitis C: Hemophilia and Hepatitis C
1　Introduction
2　A Long Day regarding the Bill of Special Measures of Hepatitis C
3　Question-and-answer Session and Resolution at the Committee of the Ministry of Health, Labor and Welfare
4　Issues of the Special Measures Law of Hepatitis C
5　Conclusion

Addendum 2　Formation of National Hemophilia Network of Japan: Shakeout of the Hemophilia Community
1　Introduction
2　Formation of National Hemophilia Network of Japan
3　Talks with the Ministry of Health, Labor and Welfare Based on Parliamentary Resolution
4　Reevaluation of Unprofitable Products of Gene Recombination Products ”NovoSeven”
5　Holding of National Hemophilia Forum
6　Implication of National Hemophilia Network of Japan
7　Conclusion

Abbreviated Chronological Tables of Association for Hemophilia/Hemophilia Community
Afterword
Acknowledgement
References