Independent Futures: Creating User-led Disability Services in a Diabling Society
Barnes, Colin; Mercer, Geof 2006 Policy Press，240p.
last update:20100729
■Barnes, Colin; Mercer, Geof 2006 Independent Futures: Creating User-led Disability Services in a Diabling Society，Policy Press，240p. ISBN-10:1861347189 ISBN-13:9781861347183 £19.99 [amazon]／[kinokuniya] ※ ds
■内容
The number of disability related support services controlled and run by disabled people themselves has increased significantly in the UK and internationally over the past forty years. As a result, greater user involvement in service provision and delivery is a key priority for many western Governments. This book provides the first comprehensive review and analysis of these developments in the UK. Drawing on evidence from a range of sources, including material from the first national study of user-controlled services, this book: provides a critical evaluation of the development and organisation of user-controlled services in the UK; identifies the principal forces - economic, political and cultural - that influence and inhibit their further development; summarises and discusses the policy implications for the future development of services; and includes an up-to-date and comprehensive literature and research review. "Independent Futures" is an essential reading for academics and students on a range of courses, including: health and social care; social work; allied health professions, such as nursing, occupational therapy and speech therapy; social policy; sociology; and psychology. It will also be of interest to practitioners and policy makers who need a reliable overview of current policy and critical analysis of key issues affecting future policy and practice.
■目次
List of figures and tables ... vi
Acknowledgements ... vii
Notes on the authors ... viii
one
Examining user-led services ... 1
Introduction ... 1
Re-thinking disability ... 2
Citizens, consumers and users ... 3
User-led organisations ... 4
Doing disability research ... 5
A note on terminology ... 5
Overview of the book ... 6
two
Traditional approaches: disability policy and the welfare state ... 9
Introduction ... 9
Historical perspectives on disability policy ... 10
Disability and the welfare state: 1940s to 1970s ... 13
Moving to the community ... 17
Disability as a personal tragedy ... 19
Changing policy perspectives on disability since 1979 ... 22
New Right ... 23
New Labour ... 25
Review ... 27
three
Disability activism and the struggle for independent living ... 29
Introduction ... 29
Towards a new disability politics ... 30
The Independent Living Movement ... 31
Disability activism in Britain ... 33
The social model of disability ... 35
Critiques of traditional community services ... 38
Building user-led services ... 43
Review ... 48
four
Researching user-led organisations ... 51
Introduction ... 51
Taking issue with 'conventional' disability research ... 51
Disability research from a social model perspective ... 54
Research gains ... 55
Accountability ... 56
Social and material relations of research production ... 57
Methodology and methods ... 59
The Creating Independent Futures study ... 63
Stage One ... 63
Stage Two ... 64
Stage Three ... 66
Stage Four ... 67
Review ... 68
five
User-led organisations: building an alternative approach ... 71
Introduction ... 71
From user consultation to user-led services ... 72
The growth of user-led services ... 76
Applying the social model of disability ... 82
Accountability and user control ... 86
Review ... 91
six
Service design and delivery: opportunities and constraints ... 93
Introduction ... 93
Delivering services in support of independent living ... 94
Service patterns ... 97
Service monitoring or control? ... 102
Resources: economic, physical and human ... 106
Funding ... 106
Location and premises ... 110
Paid staff and volunteers ... 111
Review ... 113
seven
Service users' views and experiences ... 115
Introduction ... 115
Views on mainstream services ... 116
Promoting user-led services ... 120
Accessing user-led services ... 122
Use of services ... 123
Wants and aspirations ... 130
Review ... 135
eight
Politics and campaigning ... 137
Introduction ... 137
Politics: the local viewpoint ... 137
Campaigning issues and activities ... 141
Direct action ... 143
Empowerment and consciousness raising ... 147
Don't upset the applecart ... 152
Review ... 156
nine
Policy change or retrenchment? ... 159
Introduction ... 159
Dependence, independence or inclusion? ... 159
Professional dominance and new styles of working ... 166
Partnerships ... 169
Same old services: SOS or something else? ... 172
Review ... 179
ten
Future directions ... 181
Introduction ... 181
Key themes and issues ... 182
Independent living: beyond 'social care' ... 184
Equal worth: right to life and childhood disability ... 184
Work and employment ... 186
Physical environment ... 187
Implementation ... 188
Independent living in an inclusive society ... 190
Review ... 192
References ... 193
Index ... 217
■書評・紹介
"Independent futures provides a timely and critical evaluation of user controlled services, identifying principle forces that inhibit their development and explaining the implications for social policy. It presents essential evidence and analysis for policymakers working within health, social care, education, housing and equality. It will also be a vital text for both undergraduate and postgraduate students in the social sciences and government and politics." Jane Campbell, Chair, Social Care Institute for Excellence (SCIE)
＊作成：箱田 徹