February 21, 2009 13:30-16:30
Conference Room at Soshikan Building, Ritsumeikan University, Kyoto Japan
Outline of the International Symposium Called "Research on Home Care of Patients with ALS in East Asia"
Global COE Program for Ars Vivendi at Ritsumeikan University in Japan is planning to organize the international symposium called "Research on Home Care of Patients with ALS in East Asia" in co-operation with Japan ALS Association on February 21, 2009.
The purposes of this symposium are for participants from Taiwan, Korea, Mongolia and Japan not only to share the information on home care of patients with ALS but to exchange opinions on support of ALS patients. The detailed information is as follows:
Date: February 21, 2009 (Saturday) 1:30 p.m. -4:30 p.m.
Place: Conference Room, Soshikan Building, Kinugasa Campus, Ritsumeikan University
56-1 Kitamachi, Tojiin, Kita-ku, Kyoto 603-8577 Japan
Host: Global COE Program for Ars Vivendi at Ritsumeikan University,/ Research Center for Ars Vivendi, Ritsumeikan University.
Co-host: Japan ALS Association
The host of this symposium, Global COE Program for Ars Vivendi at Ritsumeikan University, was recognized by Ministry of Education, Culture, Sports, Science and Technology(MEXT) as one of the programs to be supported form excellent educational and research base worldwide. The program has developed various kinds of research projects in order to support the existence of patients with ALS and develop their lives and it has also worked closely with Japan ALS Association. This symposium is a part of the sub-project called "Research on Establishment of Network for Patients with Rare Diseases in East Asia" and is also the first collaborative event with Japan ALS Association on support of patients with ALS in East Asia (from fiscal 2008 to 2010).
"Ars Vivendi", proposed by the Global COE program at Ritsumeikan University, focuses not only on disease, disability, aging but on experiences, knowledge and techniques of the involved persons who have experienced various differences and changes of their bodies and try to link these to studies and businesses from the viewpoint of the involved persons. In this symposium, the COE program will aim to seek the terms to support the existence of patients with ALS from the viewpoint of the involved persons.
Bureau, Research Center for Ars Vivendi at Ritsumeikan University
56-1 Kitamachi, Tojiin, Kita-ku, Kyoto 603-8577, Japan
TEL: +81-75-466-3335 FAX: +81-75-465-8371
[ Program ]
13:30-13:40 Opening Remarks:
Shin'ya Tateiwa (Professor/ Program Leader of Global COE Program Ars Vivendi, Ritsumeikan University) cf.Recent Article
Misao Hashimoto (President, Japan ALS Association/ Patient)
* Message through the live webcast "Mobachoo" at her home in Tokyo
13:40-15:00 Invited Speeches:
"The Current Status and Challenges of Home Care of Patients with ALS in Japan"[Word]/[PowerPoint]
Kimiaki Kanazawa (Secretary General, Japan ALS Association)
Katsumi Wanaka(President, Kinki Branch, Japan ALS Association/ Patient)
"The Situation of ALS Patients and Their Welfare in South Korea"
Cho Gwang Hee (Secretary General, Korean ALS Association)
Lee Sin Woo (Korean ALS Association / Patient)
"Care Service for Patients with ALS in Mongolia"
Davaatseren Sergelen (Secretary, Mongolian ALS Association/ Bereaved daughter)
"Home Care of Patients with ALS in Mongolia"
Erdenechimeg Ishdagva (Social Worker, Mongolian ALS Association/ Bereaved wife)
"Resources for Long Term Health Care and Health Care Services in Taiwan"
Su Li-Mei (Social Worker, Taiwan ALS Association)
"An Example of Home Care: The Case of Chen Ein-Shei" MS Word/PPP
Chen Ein-Shei (Taiwan ALS Association/ Patient)
15:00-15:20 Coffee Break
15:20-16:25 Panel Discussion/ Q & A
16:25-16:30 Closing Remarks
Yoshiaki Nagao (Vice President, Japan ALS Association/ Patient)
Chair: Yoko Matsubara (Professor/ Secretary General of Global COE Program Ars Vivendi, Ritsumeikan University)
NAGAO Yoshiaki Speech at the Welcome Party