TCI Asia（各国の取り組みの報告）
20171122 3時間23分
於：立命館大学大阪いばらきキャンパス・カンファレンスルーム２＆３
◆関連ページ
◇TCI-Asia
◇全国「精神病」者集団
TCI-Asia会合英語プレゼンテーション・質疑応答部分
(Video)
Moderator:
Thank you for your wonderful introduction to the video. Questions and answers sessions is the last of all the presentations, so we will go the next presentation. 素晴らしいご紹介とビデオありがとうございます。質問と回答のセッションはすべての最後にやろうと思いますので、次のに行きたいと思います。つぎは、台湾のTienさんとSissyさんです。Next presenter is Tien and Sissy from Taiwan.
◆台湾：TGQRAA
プレゼンテーション題名：
“A Brief Introduction to TGQRAA’s “Peer Support for LGBTQIA+ with Mental Illness" and Patient Rights Movements in Taiwan.”
プレゼンター：
Tien (Tien-Hsing Hao), peer of TGQRAA
Sissy (Tsai-Yu Chang), peer of TGQRAA
Hello, everyone. Good afternoon. I am Tien, Tien-Hsing Hao, Tien, and this is my peer, and also my coworker Sissy is right there. She’s doing nothing just take a picture. Maybe I just keep going on. If there is no sound, I just use my own voice. I think it’s loud enough. We are from Taiwan. Our organization is TGQRAA and I’ll give the brief introduction to our organization and then I’ll give 3 introductions to the patient-rights movement in Taiwan. So, there will be two parts in my presentation. The first part is the introduction to our organization and the second part is the rights movements in Taiwan.
This is the first part. We can ?? our from. Taiwan Gender Queer Rights Advocacy Alliance. That’s our organization. We became officially registered in 2014. Our organization is divided into several groups. Each group focus on different issue. Our group focuses on LGBTQIA+ with Mental Illness. Everybody know LGBTQIA+? We need to explain. LGBTQIA stands for L stands for Lesbian. G stands for Gay. B stands for Bi. T stands for Transgender. Q is Queer. I is Intersex. A is Asexual. + (Plus) exists because there’re so many gender or sexual identities that we can’t include also. Maybe you don’t recognize ?? … yourself ?? LGBTQIA+ anytime later you learn you’re included in the +. Those people ?? with mental illness is our peers. And me and Sissy are also peers in our group. We define mental illness. Our definition for “mental illness” does not have to follow dominant mental discourses. You don’t have to be a patient “officially”, like you got a Disability Card or you got diagnosis. You do not have to have all that. We consider “illness” as emotional states like we feeling ill or feeling distressed. Not necessary refers to psychiatry disorders. Any person who is frequently feeling mentally distressed and oppressed by dominant sex/gender discourses is welcomed to join us. We are all LGBTQIA+ with mental illness. We run our group by ourselves and speak for ourselves. LGBTQIA+ with mental illness face multiple stigmas and discriminations, but the intersectionality is always overlooked. For example, many professionals may have discriminations plus intersectional knowledge of which we overlap. For example, clinical professionals may have trained not to discriminate the disabled. But most of time they may not be “LGBT friendly”. Some consider LGBTQIA+ as diseases or some “problem to solve”. It’s important to consider the social context of our “illness”, especially those sex/gender related stigmas. “Symptom” got its social-cultural meaning. And there is a little conversation as ?? that a peer I called him little moo. One time he called me, and we had a peer support line. He called me, and he said “I got OCD”. As a peer leader, Tien, and I fell into a panic.” And I said “Yeah, me too. ?? I got OCD, too. What’s your OCD like?” Little Moo said, “I’m so afraid that other people might find out that I’m gay. Like I’m talking to you, I have to check everything… is there anybody beside me when I’m talking on the phone? Do I leave any trace that makes people know that I’m gay…I checked and checked every day and hours and hours are wasted”. So you can say that his OCD status is teacher waiving with stigma of LGBTQIA+ and that he stay and he’s very worrying about that he’d be found out ?? his sick identities.
Here I will give a brief introduction to what we are doing. The first one is that first I will ?? collect life stories. Like we have just heard, life story is very important to know each other. We open up an online space to collect stories told and written by LGBTQIA+ with mental illness. Those stories address issues like peer supports, the boundaries between normal and abnormal, and the negotiations of identities in everyday life. Stories are entrances that welcome us to develop insights to the social contexts that LGBTQIA+ with mental illness are within.
The second, we offer the peer support line like I just said I ?? set up that is totally online. We provide emotional supports, we introduce schooling, employment, medical and social welfare resources. And we provide informations about our peer support meetings if needed. Thinking about the peer support meetings, we have a peer support meeting held once a month. We get face-to-face support meeting provide safe space to share life experiences, to establish social connections with each other. We encourage members to give recognition to each other’s identities, to discuss about our situations and social conditions, to design activities for the meeting, and to brainstorm the future services we might need.
Here is some issues that we want to talk in this ??. To do all those things, all we need is passion and money. We are applying, applying, applying for government funding means KPI, Key Performance Indicators, is everything, sometimes quantity is viewed more important than quality. The emotional labor devoted to community building is always overlooked. In some contexts are overlooked. It’s not easy to apply funding if we are not “professionals”. We are patients. Our society, Taiwan, I think maybe whole while world, is so obsessed with professionals and license. So, patients are viewed as “unprofessional”. Sometimes, even we are lack of confidence in developing communities/service system by ourselves. Peer supporters and peer workers is still very new and strange concept in our society, Taiwan. So, lots of people don’t know what is peer supporter and what is the peer worker. So, although we are very glad to have this opportunity here to learn from you, and share our experience with each other. We are still learning. Sometimes we just realize that we should always be aware of the different social conditions between each other. Sometimes, "high-functional" members like me and Sissy, or one with higher cultural capital might have more power to influence group action or decision. How to build up a community that is “equal” for every member? Whose issues are considered prior? How to define “peer” or “support” if our situations are that different? Theoretical and practical knowledges are both important to develop alternative discourses. Power is very important factor for us to consider in the community group.
Here is the second part. I will give you a very brief history about patient rights movement in Taiwan. In 1980, “Disability Welfare Act” is announced but mentally ill or mentally disabled persons were not included. Mental illness-related advocacy groups in Taiwan began to set up, but most of which were dominated by patients' families. That is the first force. In 90’s, “Mental Health Law” was passed. Authorities and experts in mental health system become another dominant force. In 1997, the congress passed an amendment to change “Disability Welfare Act” to “Physically and Mentally Disabled Citizenship Protection Law”. In 2007, “Physically and Mentally Disabled Citizenship Protection Law” officially changed its name to “People with Disabilities Rights Protection Law”. It is focusing on the protection of rights and interests of persons with disabilities rather than just protection per se. In 2010, the first organization to work with both family members and patients was founded in Kaohsiung, Taiwan. But this organization is a kind of disappeared recently. Of course, there are some club houses for mental patients in Taiwan. They established around maybe 2005. There are some club houses in Taiwan. In 2014, TGQRAA, the first organization in which the decision-making levels were consisted of patients/mentally distressed people, was founded in Taiwan. We hope to open up space to explore each other's feelings and ideas, speak up for our own rights, and develop alternative discourses.
In 2017 this year, we address Article 19, CRPD, we mean Conventions for Rights of Persons with Disabilities, “Living independently and being included in the community” is very important. We advocate to government along with other organizations in Taiwan. We gathered suggestions and organized parallel report to CRPD. We are planning a proposition to amend the “Mental Health Law” in Taiwan to add more community resources. The draft bill is on its way. So, we are supporting like that. This is my sharing for everybody. Thank you very much for listening.
We hope to learn from you all. あなたたちから学びたいと思っています。
Next session is Linus and Frank from China. 次は、ライナスさんとフランクさんで、中国からです。
◆中国：CNUSP (facebook)
プレゼンテーション題名：
Peer Support in China
プレゼンター：
- introduced by Chang Feng
- interpreted by Linus Yang
Good afternoon, everybody. I’m Frank. I am Chang. Coming from Beijing, the capital of China. I have been struggling in depression for seventeen years, when I was seventeen years old. But now, I feel good. I can get around there with depression. I have a life style through jogging, and choosing public service. Running. I am 37 years In recent years, I run every day. I can run 10 kilometers every day. This morning, I have run 10 kilometers. I run more than 10 marathons every year, 32 kilometers. Because my English is poor. Next I will speak Chinese, because I am a kind of depressed my English. so I speak Chinese, sorry.
(Chinese)
（以下、英語は通訳が話している。Changさんの中国語をLinusさんが遂次通訳で英語にて発話する形式）
Now I work on supporting in the people with depression ?? people with mania, and people with bipolar, ??.
I do this because of mainly three reasons. For first reason is that, I am very lucky, I can survive to now today with support of my friends, my family members, and many the community. The second reason is I am taking that space that is doing big spaces many and doing this work makes me more passionate, maybe makes me more healthier. This is second reason why I am doing this. Third reason is that I had settled down in Beijing and I settled my family, child, and it make me more power and passion to do such a work. Now I have my own organization, named Inner-Shanghai Mental Health Center. For the previous, more than ten years, the director of therapeutic affair launched the largest online forum that psychologists help. BBS, which is an online forum. I have also been a project director for about one year for the Beijing Shangshan Public Foundation which is the first foundation concerning the mental health. For previous years, I have been so many works to person with psychosocial disabilities. Now I have been focusing on only two expert things. One is self-advocacy. One main focus for me is to work it done to censorship for disability discrimination to survive upon their conditions ?? we deserve diachronic lens our lives by our own hands. In China, many people without labor with psychosocial disability they are shameful about their labels. They feel they are guilty to get family members, make themselves to have a competence they feel they are incompetence to live in the society. They have a little to work, little to survive. The second part that I do advocacy to help the society that we have our own rights to have a freedom to make decision, make choices in our lives and society with respecting should respect our choices. In some less developed areas in China, persons with psychosocial disabilities either have very few opportunities to make their own choices. They cannot choose whether… they have to be committed into hospitals. The second one I’m doing now is to do peer support. We found that the biomedical model to our condition is not enough service. We need the support from our peers, from our families, and from the communities. The second is that we found that mainstreaming notions to persons with psychosocial disabilities is to ask that to make choice of our syndromes, symptoms, and we would like to tell the society that for psychiatric trauma, peers should co-survive along with our so-called syndromes, co-survive along with our disabilities. The third aspect I would like to address is that I believe that ?? services to others the best support to ourselves is to help others. This is my own experience. I myself am disposed by medical and psychiatry system. I found they do nothing to me. I choose to my own life course, like do running, help other peers, organizing, and such things. It’s easy to recover.
Now the activities we make are mainly divided into two parts. One to be online and the other to be offline. For the online support parts, we mainly have three expert activities. The first one is so-called “APP”, which is an application… a program on activities in your mobile phone. Which is very convenient for our communities to use and we also have ??. offer some… From the other side of the APP we offer is psychological consultation and some advise from the doctors and some other information. The second one is, as you may know in China, Wechat is a social network medley. We have a microblog service and we can publish some narrative stories from our peers, run our blogs to encourage our peers. The third aspect I’m doing is grouping that the groups that established on Wechat. This makes our peers communicate very frequently, very helpful. The second aspect which are the offline activities. We should usually… call like some “Shining pens (Training Camps)”. It’s like workshop based mainly led by survivors and ex-users. The third one could be other thing like dining, peer-dining, in ?? dine together to ?? activities. And also like jogging teams. Watch tourists jogging together. These events is not only in Beijing, it is extending to other cities, like Southern pensions, professionals usually. This shows my jogging. There are reading clubs. also about reading some books about mental health, and also share stories to support mental health survivor. This is ?? we can tell you that many friends, they get better, and recover. Most of friends can survive with their so-called psychosocial symptoms. The peer relationships include their photo ?? for concerning understanding psychosocial disabilities.
Now the difficulties we face are mainly with four. The first one is we lack governmental support. As you know the government support always fund to therapy in hospitals and institutions. There are few funds to community groups, like peer support groups. The second one will be that we still need social support. Mass media reports that their report on depression on multimedia. Most of them they are only concerned about disease on as a depression, not a social network. The amount of depression concern is less than, autistic syndrome, other diseases. The third one would be we lack the funds. As mentioned in the first one, now mainly we are self-funded, from some ?? now we make ?? economics for their families. The forth one is now we are now running very very voluntarily. We lack specialized members.
(以下、中国語から日本語への翻訳は文字起こし担当者による)
我现在专职在做自倡导、同伴支持，做一些抑郁症、发育迟缓障碍、还有精神分裂症群体的公益工作、社会服务工作。之所以这个选择，有三个原因。
私は今、うつ病や発達障害、統合失調症の当事者のための公益活動やソーシャルワークに専従しています。これには三つの理由があります。
第一个原因是因为我的经历。说实话，我能获得今天是我的幸运，离不开我爹的努力？？，离不开很多人对我的帮助。第二个原因是我现在很热爱这个事情，很喜欢这个事情。我在做这个事情的同时，对我来讲也是一个新的疗愈。虽然我现在可以很好地跟抑郁相处，但是我通过做这个事情，我的心里健康可以进一步得到提升。第三个原因是我现在更有能量…更有力量来做这个事情。其实我做这个事情也已经做了十多年了，但是过去一直是兼职，最近两年开始专职做这个事情。我现在也有了家庭，也在北京有了家，所以我更有力量做这个事情。
第一、私が体験してきたからです。実をいうと、今の私がいるのは幸運だからで、父親の努力？？と色々な人からの援助のおかげだったのです。第二、私はこの仕事を愛している、大好きだからです。私にとって、この仕事は新しい治療法にもなるのです。今はうつと上手に付き合えてはいるけど、この仕事をすることで、メンタルヘルスが更に向上できるのです。第三、私は今、この仕事をするためのエネルギー、力をより多く持っているからです。実は、この仕事を始めてから十数年がたちましたが、以前はずっとパートで働いていました。ここ数年、フルタイムで働くようになっています。そして、家庭も築いて、北京で家を持つようになったから、この仕事をするための力が備わってきているのです。
所以说我现在自己有一个机构，是”Inner Shine Psychology Health Centre”。我过去有十多年，是当时中国最大的抑郁症互动论坛，”Sunofus Psychology Health BBS”，兼职。我曾经在中国第一个关注抑郁症、关注精神健康的基金会做项目总监做了半年到…做了一年时间。我过去和我团队尝试过很多事情来帮助这个群体。但是现在我只做两件事情，自倡导和同伴支持。
というわけで、私は今、自らの組織を有しています、「Inner Shine Psychology Health Centre」といいます。かつて、当時中国最大のうつ病オンラインフォーラム、「Sunofus Psychology Health BBS」で十年以上のパートをしていました。また、国内で最初にうつ病、メンタルヘルスに注目する財団法人に、プロジェクトディレクターとして半年間…一年間勤めていました。以前、チームメンバーとたくさんのことを試して当事者を支援していました。しかし現在、二つのことしかしないのです。それは、セルフ・アドボカシーとピアサポートです。
其中我做自倡导，通过做自倡导让这个群体，不管是抑郁症，还是燥郁，还是精神分裂这个群体…减少他们的羞耻感。而作为我们这个群体，我们自身也可以通过自身的努力来获得一个全新的生命，哪怕我们跟这个疾病去共存、去相处，哪怕我们这个病…我们这个问题不能彻底得到治愈，但是我们一样可以有更好的生活。因为在中国、在中国大陆，还是有很多的患者，他们除了要承受这个问题的痛苦之外，他们还给自己带着一个标签，他们觉得自己羞愧、觉得自己没有能力、觉得自己对不起这个家庭，他们有很大的负罪感。
セルフ・アドボカシーというところですが、セルフ・アドボカシーを行うことによって、うつ病であれ、躁うつであれ、統合失調症であれ…当事者の持っている羞恥心を低めるのが目論見です。一方、当事者としては、自身の努力を通して真新しい生活を手に入れることができる、たとえこの病気と共存して生きていっても、たとえこの病気…この問題が完治できなくても、私たちはベターな暮らしを送ることが可能なのです。なぜなら、中国では、中国大陸では、この問題に伴う苦痛に耐えなくてはならないと同時に、自らにスティグマを背負わせる患者は依然として大勢いるからです。彼らは恥ずかしく思っていたり、無能だと思っていたり、家族に申し訳なく思っていたりして、極大な罪悪感を抱いているのです。
第二点，我们通过做自倡导，也希望这个社会能够给予我们这个群体更多的关注、给予更多正确的认识。然后我们也想让社会明白，我们有权利、拥有自由去选择、还有美好生活的选择。因为在中国很多落后的地区，我们这样的群体连自己的一些生活的选择、还有自主选择的权利都没有。很多时候比如说，我们生病了要去医院，很多时候是被家庭强制送到医院。还有的时候，我们做的很多选择都不是我们自己的选择。
それから、セルフ・アドボカシーを行うことで、社会に私たち当事者にもっと注目してほしい、もっと正確に認識してほしいです。そして、私たちには選択の権利、自由があるのだと、美しく生きる選択権があるのだということを社会にわかってほしいです。そのわけは、多くの後れている地域では、当事者には日常生活上の選択権、自己決定権すら与えられていないからです。例えば、病気にかかっていたら、多くの場合は家族によって強制的に病院に入れられてしまうとか。それだけでなく、私たちがした選択が当は自分で選択したんじゃなかったとか、というのがあります。
做的第二项工作是同伴支持。其中第一项是，我们面临不管是抑郁症也好，还是面临？？，还是面临精神分裂…都叫精神障碍，其实仅仅靠医疗是不够的。我们还要需要通过很多我们自身的努力、需要家庭的共同努力、家庭的支持、还有这个整个社会的关注和帮助。
二つ目はピアサポートです。まず、うつ病に対しても、？？に対しても、統合失調症に対しても…合わせて精神障害といいますか…医療だけでは物足りません。自身の努力、家族の共同努力とサポート、社会全体の関心と援助も必要なのです。
第二点同伴支持，我想能够让我们这个群体能够更好的跟这个问题去共存。因为，我不知道别的国家是不是这样，在我做这个工作的一个经验上，很多时候我们很难消除我们的一些症状、消除我们的一些痛感，但是我们可以很好地相处，然后可以更好地去提升我们的生活质量。
次に、ピアサポートで当事者により良く、この問題と共に生きて行ってもらいたいと思っています。というのは、ほかの国も同様なのかわからないけど、私の経験では、私たちは症状を改善したり、苦痛を解消したりすることは大概できない、ですが私たちはそれと上手く付き合うことはできる、そしてそれによって、生活の質を高めることができるのです。
第三个是我同时觉得…也是我的信念，相信帮助别人就是最好地帮助自己。我曾经被医院抛弃了，医院治疗方法对我来讲都没有效。我就是通过跑步和做这些事情、通过推动同伴支持、推动做一些事情让我自己慢慢得到了康复。所以我认为做同伴支持，彼此互相帮助本身就是对自己最好的帮助。
最後に、私は…私の信念でもありますが、他人を助けることで自分が助かると信じています。かつて私は病院に放棄されていた身であって、病院での治療方法はまったく効いていませんでした。私はランニングだったり、この仕事、ピアサポートなどを推し進めることで、少しずつ健康を回復させつつあったのです。ピアサポートを行って、互いに助け合うことこそが自分にとって最善の助けだと思うわけです。
我们现在做的活动主要是分线上和线下。在线上我们有三块，一个是APP、一个是微信公众号、还有一个就是微信群组和QQ群组。其中APP，这里边会有患者和家属的社区，还有心理咨询师，还有医生的帮助、解答。然后微信公众号，我们会有很多教他们的专业知识，还有患者的故事，我们每天都会有患者的康复故事。然后在微信群组，主要是大家一种抱团取暖、互助交流和经验分享。然后我们的线下活动有训练营、抗郁聚餐、还有跑步、读书会、还有户外活动。
現在の活動はオンライン活動とオフライン活動に分けて展開されています。オンライン活動はAPP、WeChatの公式アカウント、そしてWeChatグループとQQグループ、の三つです。APPでは、患者・家族のインターネットコミュニティが作られていて、心理カウンセラーと医師が援助や質疑応答をしてくれています。WeChatの公式アカウントでは、専門的知識や、患者のストーリーが配信されています。患者のリハビリを記録するストーリーは毎日更新されます。それからWeChatグループでは、もたれ合い、交流互助、経験の分かち合いを図ろうとしています。そしてオフライン活動には、トレーニングキャンプ、抗うつ食事会、またジョギング、読書会、アウトドアなどがあります。
我们现在面临的最多困难，第一个是缺乏政府的支持。政府把很多资金投给了医院，现在相对比较少地会关注我们这些…我们这样的公益组织。第二个是缺乏社会的支持。比如像自闭症、还有一些罕见病，社会大众会认同…会同情这些群体，但是对于一些精神层面的问题，比如说抑郁症、还有精神分裂，他可能会关注得少一点，而且也会有很多误解。第三个是资金缺乏。现在我们很多活动往往是我们患者自身、还有家庭，可能有些经济条件非常好的患者家庭来支持。最后就是我们这个团队缺乏一定的专业性。我们很多时候我们做这些事情主要是靠志愿者。但是志愿者往往很多也是我们这个群体，他可能会有状态不稳定，或者他康复了可能也会离开这个团队。所以会导致我们的很多活动受影响。
目下直面している課題ですが、一つ目は行政的サポートの乏しさです。行政は莫大な資金を病院に投じる一方、私たち…私たちのような非営利団体になかなか目を向けてくれません。二つ目は社会的サポートの乏しさです。自閉症や難病当事者なら、社会から認め…同情されるのですが、うつ病や統合失調症などの精神疾患となると、あまり関心が薄くて、いろいろと誤解されています。三つ目は資金の乏しさです。現在、多くの活動は、患者と家族、経済的に豊かな患者家庭からの援助で成り立っています。そして四つ目は、専門性の低さです。この仕事をするのに、主にボランティアに頼るのがほとんどです。だけど大抵のボランティアは自身が当事者でもあり、彼らは情緒不安定だったり、あるいは回復したらチームを抜けたりすることもあります。そのため多くの活動に影響を及ぼしているわけです。
(explanation of photograph on slide 9 -10)
This is the “Shining pens (Training Camps)”. This camp has more than sixty persons.
(This’s also the “Training Camps”.)
(slide 11)
This’s also the workshop, you may see the ?? their disability equality training.
(slide 12)
This is a competition with Americans for marathon in Beijing. Now we practice comprised of more than 20 team members.
(slide 13)
This is our group photo of people circus training
slide 14
This is dinning together as a local group.
(slide 15-16)
This’s also the outdoor trip.
(slide 17)
This is our book club. Members share their experience.
（本人の発話に戻る）
Sorry, thank you. Next time I will try to speak English by myself.
（プレゼンテーション、ここまで）
Moderator:中国の皆さんは、もう一つのパワーポイントのバージョンを用意してくださっていたんですけど、今回時間がなくて、ここではお話しできなかったので、私が今朝、明け方早くメールを差し上あげてるんですけど、もし受け取ってなかったら私に言ってください。コーヒーの休憩を15分くらいしたいと思ってます。
(休憩時間 Coffee break)
Moderator: I would like… I forgot to introduce each other, so I would like to ask you to give your name, your home countries, and what you want to say. When you speak, please raise your hand.
桐原: Japanese members?
Moderator: Please.
桐原: Oh, many, many, many many many. Okay? Thailand member?
Moderator: タイの人。
桐原: Oh… Welcome to Japan. Indonesia members! Welcome.
Moderator: From Hong Kong? From China? I can’t find … from Taiwan?
出席者：まだ戻ってない。
Moderator: Okay. Oh, she is from Taiwan.
桐原: Taiwan member She Likes smoke. Very, very important.
Moderator: タバコ吸ってます。From South Korea? From India? Welcome. From Sri Lanka? From Pakistan?
Moderator: 最初の人だけ自己紹介してもらっていいですか。全員じゃなくって。
Moderator: I would like to ask a person who come to TCI meeting. If this is your first time to come TCI meeting, please raise your hand. First time, If you…自己紹介してもらえますか？Person who raised your hand, please introduce yourself.
I am Yuri Goto from Japan. I work for university as staff for students with disability. Actually, I also have depression. Joining self-help group. Also I am a researcher in disability rights movement in East Asia. I am happy to come here and I would like to talk with you later. Thank you so much.
わたくし、後藤ゆりと申しまして、大学で障害学生支援の仕事をしております。ただ私も鬱をもってまして、自助グループに参加しております。またちょっと研究もやってまして、東アジアの障害者運動の研究をしています。ぜひ皆さまと、いろいろお話しできればと思っております。どうぞよろしくお願いいたします。
初めまして。山本みゆきと言います。私は大阪府下の精神障害者のネットワークの代表です。大阪には６０の精神科病院があります。入院中の方が約２万人。通院中のもので、人数は忘れましたが入退院を繰り返している者が、だいたい６万人くらい。私たちは通院中の方も入院中の方も会員になっています。私たちは普段は、病棟に入院している方々に面会に行ったりしています。電話相談、わかちあい電話というのは毎週やってます。しんどい時のわかちあいとか悔しかった思いを共有したり、どうしていこうっていう話をする電話です。お金は会費と寄付金だけで成立しています。まだまだ充分ではないですけれども、私たちの言いたいことっていうのはテレビに出演したり、新聞に投稿したり、面会をしたり、いろんな形でマスメディアに対してはニュースを出したらマスメディアの共有のボックスがあるので、府庁記者クラブというところに投函しに行ってます。最近は、国際障害者年以降は障害者福祉推進協議会という、府とか各市町村の委員会に参加しています。2000年に「入院中の精神障害者の権利宣言十項目」というものを審議会で確認しました。これが守られているかどうかを入院中の方に聞きに行っています。これからもどうぞよろしくお願いします。
I am one of a running committee of Japan national group of mental disabled people. JNGMDP has almost 500 members. I also represent members of prevent forensic detention law. It’s related to ?? law. I was the member of the disability policy committee in the cabinet office. Also, supervisor of the Japan peer staff association, which will hold 5th Japan-wide meeting in December. So, we checked (JNGMDP) committee to defend Japanese government policy making mental health law. Mr. Kirihara lobby very actively. At the first time he argued upper house. At first in upper house, there is no argument government think. But we stopped the mental health ??. This is our effort. We will now for future struggle against power of the psychiatrist. The power guarantee by the mental health law itself. We are going to abolish mental health law. Thank you.
病者集団の運営委員をしています。病者集団、日本全国で五百人以上会員がいるんですけど、そのほかに「医療観察法を許すな！ネットワーク」の代表もしてます。それから昔、内閣府の障害者政策委員会の委員もしています。日本ピアスタッフ協会の幹事もしています。精神保健福祉法の改悪案が出たというんですけど桐原さんが頑張って？？ロビイングしてくれて、なんとかストップできました。これからも精神保健福祉法の廃止に向けて頑張っていきたいと思ってます。
He is ?? my friend Atoyama. He participate here to translate for us.
後山さんは私の友達で私たちのために通訳にきてくれてます。ありがとうございます。
すみません。英語がちょっとできなくて、日本語で話してもいいですか。私はスニさんと一緒に加入している団体で働いていて、私は大学、休学して今働いていますけど、加入している団体はカミという団体は、精神障害者の権利を??二つの団体で分かれていて今オーヤンという代表さんがいらっしゃっていて、社団法人とNPOの民間団体があって、社団法人は??とか精神障害者の人権のために??（指導）とかおこなっていてNPO団体では、精神障害者の支援グループとかで一緒に参加の、自分たちで支援する、支援とかで精神障害者たちの支援とかをしていて、今はセルフヘルプグループをおこなっております。
それでいいと思います。あとは、他のは支援者にお願いしてもいいですか。
Hi. I am Seung. I will talk about our association. There are two groups. NGO part and a corporation part. I am an employee in corporation part. She is in a NGO part. We still call KAMI about…actually I heard in self-help meeting ?? from my younger brother ?? has schizophrenia. Still he is in hospital. I feel so bad about that I want to very help him in ??. Finally, I found the self-help meeting in Seoul. In the meeting I heard the ?? clock. Some of you guys know ?? He really force meet you ?? work together. That’s why I am here with as a KAMI member. Actually, I just work in this month as a KAMI member. Actually it is so shy with new members in here as a participation. ?? In other way, it is so honor. What else? Actually we are ?? had an affair last month. Help that before I work as an employee in KAMI. It was about peer support and social inclusion. That’s why I just ?? know about peer support system. We can talk about peer support system meeting. I’m gonna learn about peer support in whole Asia. I will learn more that I am so happy to meet you again. Thank you.
初めまして、ウィンと言います。タイから来ました。鬱を持ったことがありましたので、仕事も辞めたばかりです。ですけれども、今住んでるところの近くの病院がピアサポートのお話があって、わたしライセンス??を持っていますので、何かできるかなと思って、何かしたいと思います。新人ですけれどもどうぞよろしくお願いします。
Good afternoon, everyone. My name is Patcharin, please call me Yui. I work for Thai FamilyLink Psychosocial Disability Support Center for one year already. I’m going to present my work in next session. I’m how far? to get effective this on the ?? in my brain right. I’m also person beaten may told you make disability in my brain, right? ECOSORA ?? social ?? disability. I am really glad to meet you all. Thank you.
I’’m called Vincent from Hong Kong. And Susan also from Hong Kong. It is also the same Advocacy group so-called Hong Kong Advocacy Network. ??. We are very very starting up thirteen years ago, I organized ?? and Chinese. Because thirteen years ago, I organized and ?? psychosis?? We can organize the first ?? status quo in Hong Kong for ?? persons with psychosocial disabilities. Big person ?? I ?? experience opportunity wises (why this)? Because if some ?? council APM and kind of I’m not ambitious human this and no ?? peace come no ?? respect. Originate it from It focuses on the experience…They kind of psychosocial ?? characteristics. ?? I have booklets ?? the past thirty ?? years. Over the years. ??. Originate from social empowerment for persons with ??. Networking..??. to change of mindset from humanism paradigm?? to disability paradigm. We are ?? for some?? law. Social disclusive package in Hong Kong. Hong Kong is very especial because everything is seemed to be all right. ?? because everything is all right. Because be you speak disability is especially because everything is about rights. Because be speakers called we say ?? all the hospitals including peers. Because be speakers called we say ?? Hong Kong. This kind of thing.
My name is Susan. Actually, person with later psycho experience. Other time ?? at I have been diagnosed depression for 18 years. I work in mental health agency ?? .as a peer-support worker. Here I come here and want to know more about the peer-support, advocacy, and ?? self-help groups in other country and to them more. Thank you very much. Thank you.
Hello, everyone. My name is Sissy. I am Tien, I mean to you work in Taiwan.
and Tien work from Taiwan. We are peer support workers. Come to Japan, I am so proud and so happy. Nice to meet you, guys. Thank you. Sorry for waiting for us for a few minutes. As you know we are all smokers.
Moderator: This ?? comes are ??
Hello, everyone. Nice to meet you all. I am Akiko Ishioka from Waseda University. I appreciate with Mr. Kirihara not here. This is my first time to join this group. My research topic is art activities by mental disabled people in China. I would like to learn more about peer-support system of your groups. Thank you.
初めまして、わたくしはいしおかあきこと申します。早稲田大学から参りました。まず桐原さんにお礼を申し上げたいんですが、いらっしゃらないようです（笑）。わたしの研究テーマは精神障害のある方のアートで、中国にいらっしゃる方もそのアート活動なのですが。今回は初めて参加させていただきます。何と言いましたっけ…ケアサポートのシステムだとか、皆さまのグループについて今日は勉強させていただきたいと思います。ありがとうございます。
少ししか喋れないので、日本語で。わたしは1999年から精神障害者のヘルプグループ「ドリームファクトリー」というものを立ち上げて活動しています。主に活動はピアカウンセリングで、それから食事会、勉強会ですね。いろんな。今会員は北海道から沖縄まで７０人ぐらいで、賛助会員は家族の方とか専門職の方、120名くらいになっています。私は神戸というところに住んでいます。 仕事としては社会福祉協議会とか神戸市の障害者地域活動支援センターの相談員をしています。グループでこういう機関誌を出して、あまりつくれないんですけど、年に二回から三回出そうと思っているんですけど、なかなか一人でいろんなことをやっているので出来ていません。今日は桐原さんに声をかけていただいて、初めての参加です。皆さんにお会いできてとても嬉しいです。よろしくお願いします。
Moderator: Is there anyone?
I am from ??. I have already introduced myself, but I am Chintha from ?? Sri Lanka. ?? My story is different from others, because I'm a suicide survivor. ?? I have been diagnosed for 29 years. So ?? naturally peer support from for me to survive in community by your friends,?? I have ?? got episode of depression.??. So I joined basically to lead it in Sri Lanka, which is the organization working in community venture development. I didn’t have any understanding about mental health. So I started reading literature. Then I found that I had same experience as depression. I was not sure, so I talked with psychiatrist and then diagnosed me. So for 29 years suicide survivor. To survive is a great ??. I was lucky about that. Person with psychosocial disability. I am more spiritual therapy yoga. Also working me as as a person with psychosocial disability, as a self-help group, I ?? disability. ?? The group that ?? Sri Lanka. I found that quite consumer action quota. I ?? United States like ??. ?? naturally developed in East Asia Although people who have joined the ?? school then ?? program, on community mental ??. Because They start ?? placing me what they can do for the work I do, and they say there ?? ?? because of me. Then I said “No”. Because you are ?? you are participating in the program ??. They say “they cannot do ?? they are doing. Then you came out because you’re telling your story.” That’s how we started. ?? Then I survivor’s guilt’s ?? Why don’t you share the story? Their life story. This life story, ?? some gets others come out. As they come out. So I’m lucky to manage to now. Even however, because we were taken other ?? bump and in other area. Other examples in other area. The psychosocial workers Initiator consensus group. Now we are go to about 65 in Sri Lanka. ?? colony membership of almost 5000 people. And finally there are ?? no more than ?? I’m proud, and really happy to ?? something. Now I am more invited that developing 65 groups to operate like our organization. That’s my role. I’m recently I grind away help itself? My profession is quite different because I start as a journalist, ?? journalist. Same to help me to you who needs to come out. Then I joined in development sector. ??. And also there’re some more community working, ?? with poor people in Sri Lanka. Helping them into increase ?? income and live a decent life. They have more gone to be basically to work. work with persons with psychosocial disabilities. And all the experience I am trying make the stock of get people ?? that include people with disabilities and psychosocial disabilities in to their no one our developmental programs. So how ?? do we do this? ?? Number one is educate community. Different issues related to mental health is for the recent stigma and discrimination. The second way is to build the confidence of community development workers to involve persons with psychosocial disabilities and (their) families in the developmental programs. Third one is, it is very difficult, encourage mental health professionals to develop participate in other stake holders. Because they are very isolated, psychiatrists ??.We are trying our best to get them to ?? others to pass succeed. Third one is advocating for life support file for establish ?? national mental health quality. Do some before as people with psychosocial disability. So far we are doing well. And I came here to learn more from you and I real that but I mean ?? younger sense, and I will bring back to Sri Lanka. Thank you.
Moderator: Is there anyone who is this is the first time? No? So, it is OK to go to next session of the Power Point?
◆香港：Hong Kong Advocacy Network
プレゼンテーション題名：
Hong Kong Presentation
発表者：
Vincent CHENG Chung Yan
Susan CHAN Wing Yu
So, everybody, I am glad to come here to talk about from you, and I am Vincent, and she is Susan from Hong Kong. I am ?? person for reflect experience and also social worker working at mental health agency in Hong Kong. As I said before, I am happy to be a self-advocate 20 years ago. I was taught in the university to become a social worker. Now I and Gen-San will be coupley work in my working agency. Including should developed peer-support composure in our mental health agency. So I can see that the peer-support is the two dimensions: formal ones and informal ones. Informal peer-support of ours in the community, we organize self-help group, consumer self-help group that advocate for the changes for the community. The other is ?? so-called one-more life peer support ?? peer-support. These two things ?? are ?? service systems. This is path transit charges opportunities, whole disability-rights movement. So I can poetry it’s about this kind of things. Hong Kong Advocacy Network is, we are We have space, some somehow… some slogans in oppression and trauma, we transform. OK is win, we want ?? what is win ? oppression and disability, because oppression and trauma are all humanity within it. ?? same thing in our lives It is kind of occasion trauma, also called. So we can come up with oppression and trauma so-called ?? characteristics. ?? some professions know these disabilities oppress that composes, behavior, social kind of things. ?? experiences. So ?? see more clearly our profession is. Because Hong Kong peer-support movement is ?? became long times ago3. Professor ?? in United States about the first half of last Century ?? in United States. ?? Especially after the Second World War. ?? polish in United States. Advocates have opportunity to support, versus mainstream in self-profession. The critically to safe space operation such obvious Australia to that such as ?? psychiatry house, psychology’s power??. always ?? At the very beginning, the shared the stories. After the Second World war, about the civil rights movement in 1950 to 1960’s ?? disability rights movements, this kind of movements keep ?? human-white challenge ?? very beginning. ?? community mental health movement in Western countries. A lot of surface ?? Together in Asia ?? support began to emerge we are not sure ?? However, they are there is always a kind of ?? houses about peer and control. Support system reached peer as but somewhat controversial in their ??. So their all passion is always ?? service system. Then, around 1970s, the peer operate ?? space United States, ?? advocates. The peer operation is usually the peer one stand for ?? The peer in 1980s that peer training management system in United States is already workable. ?? therapeutic. This is very very ?? like peer supports?? To mainstream service system. Very important development because ?? give professor support to us. Then, about 1990s, a couple of movement occurred in Western countries, mainly English-speaking countries. Such as Unites States, United Kingdom, Australia, New Zealand, Canada, such kind of that. very important process originates strong ?? self-?? Civil rights movement. Of course, converge. He has a very rich special characteristic, because he joined in the professional advocator. So it’s very important ?? that employ the professional, those peer advocators to officially recovery. What do we mean recovery? I can expand with explain it later. Then, we can accomplish ?? policy makers, so ??, so we can see that essence of civil rights movement can be realized in ?? movement, because they joined it altogether. They call ambition ?? strategy in Western country. ?? peer support movement in ?? because a lot of local peer-support workers include in therapy systems. ?? peer professionals. ?? peer professional ?? professional ?? as psychiatrists, with experiences, ?? and experiences. Because they have different experiences, they are professionals ?? a lot system power between the systems. So it’s very important to mentor him. ?? support service, and ?? co-production. Co-production is chart we prepare ?? wide production service. However, very internationally, there are concern about corruption. It is ?? peer-support, maybe paced by professional paternalistic service system ideology. This is very naturally ?? to the peer-support workers in the systems, so we ?? corruption, because peer-support should be linked with self-help group provision. However, ?? ambition ??some sort of control. Because some peer support workers in Hong Kong are included in Hospitals. ?? wise patients, and picked in they take a medicine ??, compile ??. So this is a time of corruption. ?? happen in the services, though. So at here ?? words then, ?? training, ?? supervision, and system that we can change. ?? they ?? international network ?? progress. Very important to ?? experiment. That web-based empowerment ?? ?? movement have some spirit ??. Actually ?? commit is not physical recovery. This is a cultural recovery, social recovery. Recovery come from wide-relationship wise responsibility ?? ?? in community. ?? Certainly, recovery is very much like ??. All our experiences ?? learn from these experiences. So that experiences is not yours, but is recover sources. What peer-support means. So professional is very important, because ?? benchmark. ?? This is all ?? has also be involved in peers and participating, ??, recovering, enabling, the service. ?? are Together with the professionals. So two kinds of expertise is very first way to listen. The first expertise is the experiences. The other expertise is professional knowledge. Two kind of expertise is equal in the service in ?? recovery process. So this ?? professionally. Collaborate in the service in recovery process. ?? How we involve the whole process? ?? research them for the professional ??. Because they can collaborate as peers in wide ?? service. Move that ?? experiences among the peers. So they can come together to ?? future changes. So ?? dilemma in the system, because we can ?? I’m sorry, I’m bit anxious, because my first language is not English. ?? some workshop ?? professionals ?? resists. We can work each other together. ?? change together. ?? together. So we ?? movement is OK. So Hong Kong is being different from Western. Professionally, then, go ahead the system. Go ahead the community services, initiated by professional. Then, ?? following the Western model, as rest of you can ?? honestly, ?? 1996, I am one of the found of the ??. Then CRPD ?? implemented in Hong Kong in 2008, but not such come not implement in Hong Kong peers mentality. This is a ?? of ?? movement, because ?? movement is ??. The ?? should be more wiser. ?? maybe lesser than?? There some storytelling in ?? localize in couple of approach, then peer-support movement launch 2011 ?? peer-support ?? hospital ?? setting. Then, you can see that ?? is not so self-help based. So the peer ??. The system cannot be changed just by peer-support movement and ?? because the movement so we can buy ?? wiser. ?? this movement ?? peer-support movement in set up another self-help movement. Within the ?? whole system changes. So what we are doing is to ?? our network, Hong Kong Advocacy Network. So 20 years ago I was 20 years old, I was advocating for the resources improvement. Although ?? then. They just ?? ill persons. ?? the first wave I can ?? wide purpose of ??. ?? This ?? contributed for to the changes, because they let ?? wise ??. ?? many ?? spaces to guess how the serves divide ourselves. ?? difference. So any collaboration between stakeholders. ?? conversing values. ?? women come to ?? in ??. Network become international network. So we need to call into CRPD and ?? movement. ?? from collaboration. It’s very important to our future direction. Emerging of peer-support movement in Hong Kong is ?? in 2011. ?? First peer-support cup ?? in hospital since 2011. Now ??, the peer-supporter recruited in the hospital ??. And ?? severalcommunity mental health movement ?? in mental health agency Chen recruited here the support workers. The research ?? international peer-supporters have to empower themselves to contribute to the anti-stigma in their communities. We ?? agency advocacy ?? project ?? peer-support worker work in the community mental health centers ??. by next years. ?? recruited in international ??. Because ?? cultural, social ??. To ?? peer-support worker, ?? competent. ?? low integrity of peer-support workers, so international campaign of peer-support Japan has 20 per cent, Thailand ??, kind of low integrity of peer-support workers. Not ?? in social control. Betraying self-determination of psychiatric users. Opportunity of service is ?? survival purposes ?? , it is very important. Then, we think ?? then co-?? of ?? ?? ask them to ??. Then ?? support systems. Including professionals. So the second wave in the Hong Kong is second wave of self-help network movement in Hong Kong. This kind of community group costs ??, tell the story anti stigma. ?? association for parenting you??. ?? harmed by the society ??. The society call the suicide. ?? suicide survivor means you advocate in the society restricts ?? not paying as you. Advocacy movements initiated equal by looking agency 2014 was ?? movement. I made ?? healer as well. ?? healer is ?? a kind of experience kitchen to ?? share the ??. So human rights movements ?? advocate for we can share experiences this kind of human diversity. What we are doing is to integrate the experiences into human relationship in ??. So ?? is two agencies doing this kind of things. So, ?? inspiring you to ?? human rights. It’s peer-network. Network by persons with ?? experiences, ?? professionals. ?? So, recruiting experts, the persons with ?? experiences and professionals come together to organize this kind of movement. We apologize ?? movement. Participate in the ?? ?? We are here to learn from you. ?? the first generation of advocacy in United States, and I learn ?? CPR, C stands for Connection, P stands for Power and Powerment, R stands for ?? We support persons’ recoloration ?? emotional ??. non-heterological perspective in trauma informed perspectives. Connect with the persons with ?? come from emotional ??. We share with university students, so you can see how the Hong Kong situation is. community mental health movement ?? in mental health agency Chen recruited here the support workers. The research ?? international peer-supporters have to empower themselves to contribute to the anti-stigma in their communities. We ?? agency advocacy ?? project ?? peer-support worker work in the community mental health centers ??. by next years. ?? recruited in international ??. Because ?? cultural, social ??. To ?? peer-support worker, ?? competent. ?? low integrity of peer-support workers, so international campaign of peer-support Japan has 20 per cent, Thailand ??, kind of low integrity of peer-support workers. Not ?? in social control. Betraying self-determination of psychiatric users. Opportunity of service is ?? survival purposes ?? , it is very important. Then, we think ?? then co-?? of ?? ?? ask them to ??. Then ?? support systems. Including professionals. So the second wave in the Hong Kong is second wave of self-help network movement in Hong Kong. This kind of community group costs ??, tell the story anti stigma. ?? association for parenting you??. ?? harmed by the society ??. The society call the suicide. ?? suicide survivor means you advocate in the society restricts ?? not paying as you. Advocacy movements initiated equal by looking agency 2014 was ?? movement. I made ?? healer as well. ?? healer is ?? a kind of experience kitchen to ?? share the ??. So human rights movements ?? advocate for we can share experiences this kind of human diversity. What we are doing is to integrate the experiences into human relationship in ??. So ?? is two agencies doing this kind of things. So, ?? inspiring you to ?? human rights. It’s peer-network. Network by persons with ?? experiences, ?? professionals. ?? So, recruiting experts, the persons with ?? experiences and professionals come together to organize this kind of movement. We apologize ?? movement. Participate in the ?? ?? We are here to learn from you. ?? the first generation of advocacy in United States, and I learn ?? CPR, C stands for Connection, P stands for Power and Powerment, R stands for ?? We support persons’ recoloration ?? emotional ??. non-heterological perspective in trauma informed perspectives. Connect with the persons with ?? come from emotional ??. We share with university students, so you can see how the Hong Kong situation is. community mental health movement ?? in mental health agency Chen recruited here the support workers. The research ?? international peer-supporters have to empower themselves to contribute to the anti-stigma in their communities. We ?? agency advocacy ?? project ?? peer-support worker work in the community mental health centers ??. by next years. ?? recruited in international ??. Because ?? cultural, social ??. To ?? peer-support worker, ?? competent. ?? low integrity of peer-support workers, so international campaign of peer-support Japan has 20 per cent, Thailand ??, kind of low integrity of peer-support workers. Not ?? in social control. Betraying self-determination of psychiatric users. Opportunity of service is ?? survival purposes ?? , it is very important. Then, we think ?? then co-?? of ?? ?? ask them to ??. Then ?? support systems. Including professionals. So the second wave in the Hong Kong is second wave of self-help network movement in Hong Kong. This kind of community group costs ??, tell the story anti stigma. ?? association for parenting you??. ?? harmed by the society ??. The society call the suicide. ?? suicide survivor means you advocate in the society restricts ?? not paying as you. Advocacy movements initiated equal by looking agency 2014 was ?? movement. I made ?? healer as well. ?? healer is ?? a kind of experience kitchen to ?? share the ??. So human rights movements ?? advocate for we can share experiences this kind of human diversity. What we are doing is to integrate the experiences into human relationship in ??. So ?? is two agencies doing this kind of things. So, ?? inspiring you to ?? human rights. It’s peer-network. Network by persons with ?? experiences, ?? professionals. ?? So, recruiting experts, the persons with ?? experiences and professionals come together to organize this kind of movement. We apologize ?? movement. Participate in the ?? ?? We are here to learn from you. ?? the first generation of advocacy in United States, and I learn ?? CPR, C stands for Connection, P stands for Power and Powerment, R stands for ?? We support persons’ recoloration ?? emotional ??. non-heterological perspective in trauma informed perspectives. Connect with the persons with ?? come from emotional ??. We share with university students, so you can see how the Hong Kong situation is.
community mental health movement ?? in mental health agency Chen recruited here the support workers. The research ?? international peer-supporters have to empower themselves to contribute to the anti-stigma in their communities. We ?? agency advocacy ?? project ?? peer-support worker work in the community mental health centers ??. by next years. ?? recruited in international ??. Because ?? cultural, social ??. To ?? peer-support worker, ?? competent. ?? low integrity of peer-support workers, so international campaign of peer-support Japan has 20 per cent, Thailand ??, kind of low integrity of peer-support workers. Not ?? in social control. Betraying self-determination of psychiatric users. Opportunity of service is ?? survival purposes ?? , it is very important. Then, we think ?? then co-?? of ?? ?? ask them to ??. Then ?? support systems. Including professionals. So the second wave in the Hong Kong is second wave of self-help network movement in Hong Kong. This kind of community group costs ??, tell the story anti stigma. ?? association for parenting you??. ?? harmed by the society ??. The society call the suicide. ?? suicide survivor means you advocate in the society restricts ?? not paying as you. Advocacy movements initiated equal by looking agency 2014 was ?? movement. I made ?? healer as well. ?? healer is ?? a kind of experience kitchen to ?? share the ??. So human rights movements ?? advocate for we can share experiences this kind of human diversity. What we are doing is to integrate the experiences into human relationship in ??. So ?? is two agencies doing this kind of things. So, ?? inspiring you to ?? human rights. It’s peer-network. Network by persons with ?? experiences, ?? professionals. ?? So, recruiting experts, the persons with ?? experiences and professionals come together to organize this kind of movement. We apologize ?? movement. Participate in the ?? ?? We are here to learn from you. ?? the first generation of advocacy in United States, and I learn ?? CPR, C stands for Connection, P stands for Power and Powerment, R stands for ?? We support persons’ recoloration ?? emotional ??. non-heterological perspective in trauma informed perspectives. Connect with the persons with ?? come from emotional ??. We share with university students, so you can see how the Hong Kong situation is.
(Video)
It fin the works last ? sorry. ?? necessary we are to family face of my place we could talk about advocate support inclusion, and or the advocate network has been peer net co ?? actually. ?? ??. advocates network, that should be peer-net ?? including professionals. ?? recovery ??. International network ??. ?? in Hong Kong. ?? web-based. How should be involved ?? including professionals ?? co-advocacy work ?? peer-support alternative professionals that be shared with ??. ?? that initiative. We are doing ?? mental health organization in Hong Kong. And ?? . Because I will be sharp in hospital in east polarize in the multi-hospital. ?? in Hong Kong. This is a ?? in Hong Kong. Hong Kong is very small, so all kind of things is very compete and then ?? in home ?? psychosocial disability. Because socially exceeds purpose, social still has also ?? how ?? houses. somehow socially exclusive It’s not practicing other countries. in other countries. ?? is that ?? Hong Kong politic paper. ?? is the top in CRPD ?? top-rated ??. Thank you very much.
Moderator: Is there anyone to ask a question to the session to presentation from Hong Kong? Is there anyone to ask question?
I saw in ?? presentation Yan-San? Is that Yan-San ?? medical company?
Because Yan-San company ?? I work in agency. I work in social service agency to ?? multi-reality project. ?? they are ??. No any restriction to how to send the materials.
Ah.
First be our produce to do some to some psycho education materials. Such as diagnoses, symptoms, and how to check it?. ?? experience participating to the project. of be check ambience years. More about human rights movement.
Moderator: Is there anyone to ask them a question?
I want to know that international charter of peer-support.
ピアサポートの国際憲章というのは何だという。
It is in Australia, and then some other ?? Thailand, Japan is ??. ?? EU cannot fully ??. ?? . what are you about set the international surface, we cannot ? the internet. And then we should be trusted by memory ?? what as psychiatry work ??. ?? psychiatry call peer-support in psychology ?? in France, and band of psychology ?? efficient ?? …recovery ??. ?? peer-support is related with self-help movement that I descent before and do you have ?? a piece of wrong (long??) property of the peer-support. ?? peer-support ?? emerging consensus is important, so rights of peer-support is kind this Although polarization is ?? different countries. But ?? and some ?? of peer support ?? of peer-support. ?? experiences. The whole package should be this kind of things. So this ?? peer-support. ?? How peer-supporter come from natural care.
Are there any differences from code of ethics?
??.. It is a lot of code of ethics. ?? peer-support. ??.
Moderator: Thank you for ??. very interesting presentation. I’m so managed to these people. I thinks ??, because peer-support for ?? including Asian experiences of peer-support.
Network?
I have a question from a point of view culture and quite a few ?? CRPD countries. My question is whether you need to choose some design element soft particular more than ?? Asian experience we have ether different questions.? ?? different question. The other is whether recovery to inclusion you more very much be ?? instrument between many years. Then we other go among about support networks in politics. The company, or offering company people psycho-social disability that delivering ?? psychosocial disability ?? inclusion. ?? Inclusion to you be happened to ??. Which could also be peer-support but I found a mode of recovery somewhat I can somewhat ?? feel that was very strong elements of culture, which can actually be used for inclusion. Then recovery. That’s what I want to share.
Share the question but, my experience was on you talk about the permanent come this somebody economic in power. Found the ?? economic problem. ?? empowerment. Like ?? . I have ??. the professionals. ?? develop culture. Our experience is that people who are in the economic sector should also be ??.
Moderator: Is there any question? So we will be begin the presentation from ?.
◆パキスタン：
プレゼンテーション題名：
??
プレセンター：Rokan ??
Hello everyone. My name is Rokan?? . I am from Pakistan. Representing special currency program. Which is cross-disability movement in the region. I woks in ?? life-support center for disability in Pakistan. So, our objective. Our objective is offer organization is to create political marshal teachers, parents, care??, nurse, social persons. Create ?? futures. ??. persons to develop 4 groups in cities, downs, and religions who can guide families in the next ?? with diagnoses. Assessment and cleaning trainings. ?? service survivors. To ?? campaign for creating workshops. These are our programs. Guarantee in learning our organization. We will talk more about each program in the coming presentation. That’s one of our programs is networking. This is a programming of you have conferences: ??, ??, and youth with disabilities in action. national form the woman disabilities and you ?? disabilities in action. Task force is a network of life mind, which is working for inter-universe disabilities. Both humanitarian and governmental processes. These are organizations consists of BPO??, ??, and ??. They are ?? in task force from different organizations like handicap international, ??, and PLAN international, ?? international, and many more. The many books?? but on the other hand, the task force ?? is ?? . National forum for woman with disabilities is international network of woman with disabilities ?? network participants which works for advocating and inclusion for woman with disabilities. Because woman with disabilities are facing ?? discrimination in Pakistan, ?? disability. The Pakistan Disability movement has limited collations with gender movement. Very stressful. ?? also ?? DPOs to ensure equal participation of women with disabilities and ?? strategic levels. Youth with disabilities in action is a network of young disabled people. This is working on key issue of youth like education, empowerment, and ?? with disability. This network mainly focus on young and ?? persons with disabilities in ?? thematic area ?? network is ?? youth with psychosocial disabilities and intellectual disabilities to ?? ??, provides mental ??. ?? between persons with disabilities and peer-support workers which ?? attract each other and share their experiences. Our next program is ?? disabilities. In this program ?? conferences in Pakistan disability Act. ?? parliamentarians for development of Pakistan Disability Act. Until now we have a ?? bill, which was approved by ?? and ?? stakeholders. Although this is not ?? on CRPD, but this is progress ?? for ?? groups. I have a soft copy of this. If anyone would like to ??, we’ll share the copy. Mental Health Bill is the second ??, yet ?? is working ?? parliamentarians, that is ??, and development of Human Rights Bill, which should be comply with CRPD, ?? is not based with medical approach. ?? is ?? Pakistan ?? Charity. We are going to ??, however, with permission with ?? psychiatric ??. ?? questioned that in the centers fall. ?? persons with disabilities. But ??, unfortunately though, Pakistan sets up ?? Bill ?? refuse to change the ?? fall. We have developed first ?? disability ?? in Pakistan. With the collaboration with civil society stakeholders and ??, equally represented by International Disability Human Rights allies ?? in Geneva. I have a soft copy of this report ??. If anyone of you would like to read this report, I would also like to share this report as well. The other report ?? is we are working on parallel report on CRPD, with collaboration with key organizations ?? support is that ?? human rights in Pakistan has not yet published the report. On the other hand, we have a better ?? submitted ?? CRPD and have not ?? human rights development of stakeholder report. The other program of ?? is ?? training. This is ?? skills. We have developed ?? should be knowledge-centered approach ?? One in each city and two in the capital city in English-speaking persons with disabilities on assistive technology and computer skills. Then ?? acquire ?? from ?? centers in ?? two years. The computer skills between ?? development, mobile app development, and software ??. Then we are speaking for ?? we are ?? collaboration with national training center of special ?? to expert of ?? in crafting. ?? persons with disabilities they are ?? in training center to learn the ?? work, to which is ?? . Technology development skills is key concept of ?? to models. ?? we have developed two mobile apps in workshops, in which all by developed by persons with ?? disabilities I trained here, ?? some of them ?? employee ?? some of them have opened their own workshops. Recently we have developed partition ?? with this number, which is one of certify work experience and they have need to pay fee to ?? psychosocial disabilities in ??. Any privilege thought we can be? The next program is the ?? department. ?? conference in Pakistan. And they have ?? work support from ?? 2009 in Pakistan. Initially, ?? psychiatry movement ?? severe disabilities in workforce, and at the same time, with intellectual disability on ??, within line of their own offices ?? And factories to job fairs talent hunting programs regarding one ?? person with disabilities regarding ?? factory and offices. The next program is inclusive education. ?? education is one of the most important components to focus on initiate the pilot project on inclusive education system in Pakistan. In this project ?? two schools from this different states, ?? and ??. These schools are ?? from ?? In the first day of this project, those schools are evaluated ?? by the persons with disabilities and then in the second phase, ?? study is conducted on the collection of data of intellectual disabilities in all the six and along 600 ?? bills, and ?? six. The next step is the capacity building of the governmental school staff and teachers. There are 90 teachers and ?? .. private education system with the support of management to ?? session is conducted on disability to sensitize them about disability and ?? They endorse ?? regarding disability in those schools. The next program is direct support. Direct support is community assistance ?? life ?? of persons with disabilities in Pakistan. In this program we are focused on three different conferences. One is ?? personal assistance who are ?? not everything. Second is persons with severe disabilities ?? who are not good at care-takers ?? provide personal assistance free of fault. We have ?? program ?? . ??... durations who want to support ?? making lines in ?? persons with severe disabilities. Then ?? cost pf personal assistance and care-takers to ?? we are able to generate income for care-takers and life peer assistance. To persons with severe disabilities to make their life easy. Thank you very much, thank you.
Sorry, only one question. In Pakistan, ?? optional protocol of CRPD?
I don’t know what optional protocol is.
Japan, ?? optional protocol.
Moderator: Is there any question?
We are ?? from ?? Where is Yui?? Ah, …
(小声で話しているが聞き取れない)
◆タイ：Thai Family Link Association
プレゼンテーション題名：
Thai Family Link Psychosocial Disability Service Center
プレゼンター：
？？（Thailand）
Good afternoon, everyone. I’m Yui. I would like to present my work ?? I work for Thai FamilyLink Psychosocial Disability Service Center. Our center was founded in 2015. It is Thai government’s policy to provide persons with disability can access to the Government’s assistance services easier. All the financial of our services are supported by the Person with Disability Empowerment Fund which accumulated through the fine for not employing person with disability. The aim of Thai FamilyLink Psychosocial Disability Service Center is to provide information such as rights, social welfare, and services which the clients will ask for as Government assigned, including giving consults or process of asking for Psychosocial Disability welfare. Advocacy in order to get rid of unfair discriminations for the person with psychosocial disabilities and person with mental illness, and welfare for person with disabilities. Provide services for standard livings, working skills, job trainings, employment services. Provide services to help the persons with psychosocial disability or persons with mental illness to get medical services and boost self capacities. Co-ordinate with government sectors which have responsibilities for helping persons with psychosocial difficulties. There’re three guiding ?? forum ?? We focus on three main pillars. The first one is human rights. Second, recovery-oriented approach. The third one is independent living. Our responsibility is to provide services to the persons with psychosocial disability, person with mental illness and caregivers. The services are included as follows. First one. Helping persons with psychosocial disability to get a Person with Disability Card. Persons who have this card can get many services such as: free access to Underground and Sky-train, get a discount for transportations such as train or air tickets for Thai Airways, and allow them to use medical services which is more convenient than normal systems. Discounts for many services. Provide more accessibility for living. Helping persons with psychosocial disability to get disability allowance which is about 800 baht per month. Finding a suitable Job for clients. Fourth, Provide Life coach and Job coach, once he gets a job. Five, Provide Peer counseling and psycho-therapy. Sixth, Provide recovery plans. And follows the plan step by step. In this year, we have a license to use Outcomes Star: A tried and tested tool for supporting and measuring change which is designed by Outcomes Star from the UK. This is how the form look like. Provide Recovery Oriented Services activities are conducted from Outcomes Star by using its’ 10 areas as follows: First one is Managing mental health. Second, physical health & self-care. Third, Living Skills. Four, Social networks. Five, Work. Six, Relationships Seven, Addictive behavior. Eight, Responsibilities. Nine, Identity & self-esteem. Ten, Trust & Hope. Our Recovery oriented Service activities are included as follows. The first one, Social Networking. Second, Illness management and recovery. Third, Self-identity and self-awareness. Communication skills. Self-cares and personality. Living skills. Self-responsibilities as a member of family, community, and society. Eight, Music and singing. Nine, Art therapy
Ten, English is fun. Eleven, Computer and craft as work skill trainings. Our target group of people are as follows. The first one, people with psychosocial disabilities. Second, persons with chronic mental illness. Third one, caregivers. In this year, we are asked to conduct a research about the effectiveness of providing Recovery Oriented Services. We are expecting to process the research by January 2018. Other activities. Provide consulting individually / behavior modification. Co-ordinate in order to access medication services, boost self-capacities, and welfare for persons with psychosocial disability. Referral the patients. Support for further studying. Employment service, applying for a job, Job coach for persons with psychosocial disability and psychosocial challenge. Co-ordinate with others clubs such as Biporlar’s friends club, Shining Club. Shining Club is a depression group. Best Friends Club is a ?? self-help group. Within 3 months clients will leave attending to the Recovery Oriented activities program. Then they will be measured again for any changes after attending the program. Every clients will be measured before and after attending the activities. We will keep the records for improving our services or our working in the future.
It is ?? very brief ??.
(02:44:25)
Moderator: Is there any question?
I’m curious about Thai Family Link Psychosocial Disability Service Center has any relationships with family association ?? companies ?? association? ?? caregiver?
We set up our service center. Because of governmental policy to set up the center ?? it’s so important to persons with disability to can access to ??
Okay. ?? Sorry. ??...persons with disability in wide apace of ??. I don’t know …. Persons with PSP on life-based approach. Self-determination and such kind of things.
You mean persons with disability and ??
??. Yeah.
Most of parents patients rely on their family. Most of them don’t have work, so they just rely on members.
Okay.
Thank you. ?? Thailand group. Gently I think TCI Asia group we could discuss this. I think after the Convention for Rights of Persons with Disabilities scheme is ?? recovery model is sufficient to ?? more inclusion of psychosocial disabilities. ??Rokan’s question to Thai presentation was interesting, because he did not bring recovery at all. He talked more about ?? that ?? one. In ?? CRPD, CRPD framework. In Korea ?? we have just started mental health peer-support ?? human rights, in our framework, which goes beyond recovery towards inclusion. So in the context of peer-support, if we are going to make comply with CRPD, how to also discuss this international advocacy forum, ?? what other ?? to come in. For us, it is quite important to ?? For example, ??. Advocacy work, ?? larger disability movement. ?? peer-support movement, ?? rely to the West. Is the ?? engagement ?? mental health system. No ?? beyond that. ?? CRPD. We go very beyond, because just engagement ?? just a reflective consider from ?? peer-movement, so Asia is more CRPD compliance. This is something wanted to share.
Moderator: Is there any question to participants in Indonesia, Thailand, China, previous presentations?
??
Not yet?,
Moderator: Yes.
Like Hong Kong, whole system is very much ??. It is sophisticated, so-called wealthy, and so-called wealthy very much as system. ?? profession, though. So there are difficulty to change professionals. ?? some kinds of strategy, should be ?? advocator. ?? it is difficult, because there are ?? about ?? this kind of ?? of CRPD.
Moderator: Is there any question to previous session? Okay?
すみません、日本語で。日本でも、先ほど、家族でってことをいわれたと思うんですけども。家族に依存するとか。日本でも、とってもそれは多いんですけれども、アジアって、家族主義でしょ。だけど、親から離れることによって親子関係がよくなってるってことがけっこう、私のグループではあるので、先ほどの社会保障制度の問題なんだけれども、言いたいことが言えなくって、親の意向がそのまま本人の支援になっていっているってことはないんですか？
(英訳)
そうですね、家族と子どもの関係という話しはですね、場合によって時々、特に最近の方はですね、日本も昔はあったかもしれないですけれども、親孝行という信仰を持って息子は親のために、いろいろなことを、おふくろは正しい、という考え方もありますね。タイでも今でもそういう考え方もありますので、もし親方がそういう考え方を持っているままでThai Family Associationに来たら、その考え方が変わらないと、話し合うことはちょっとできないと思いますね。
すいません、日本語で。香港の方がお話しをされた内容について、さっきインドの女性の方が質問をされたかなと思うんですけれども、ピアサポートモデルとか、リカバリーモデルというのが専門家によってつくられていった歴史があるということについて、西洋型の歴史をもっているということについて、もう少しアジアの文化とか歴史に基づいて検討しなおしたほうがいいのではないか、という意見でしたね。そうでしたね。わたしもそういうふうな意見を常々感じています、日本で(笑)。というのはなぜかというと、日本では日本精神科病院協会という病院を経営する人たちの集まりが、精神障害者自身のピアサポートの権利擁護活動をつくるんだ、というふうに来年からしようとしています。そのためのお金を国が1500万円ぐらい来年度予算をつけようとしています。わたしはそれについて、とてもおかしいなと思っています。なぜかというと、病院の経営者団体が日本の専門家の組織の中では一番トップにいます。そのトップにいる団体がユーザー団体の組織化をしていく、しかもそこにお金をつけていく。時給1000円ぐらいの予算をつけているんですけれども、仕事の仕方としては医者に物言わない患者の本心を患者同士で聞き取れと、そして聞き取った内容を医者に報告せよという内容なんですね。それはなんたることかと、わたしは思っています。一番大事な心の内容の部分を主治医に言えない時期、言わない人がいると思いますね。それを聞き取れないから、あんたやってぇな、お金出すからやってぇなといって、それを精神障害者のピアサポート活動であると言われたら、わたしはちゃうなぁと思っています。そういうふうな感覚というのを、インドの方と共有できるのではないかと勝手に思ったんですけど。彼なんかは経験的に、わたしが日本で感じているような感覚を持っておられるのかなぁ、という。感じておられた、そんな経験があるのかしら、という質問です。
（英訳）
I have a little bit for Ms. Miyuki Yamamoto’s story. Mental hospital owner’s association force the peer-worker that they said peer worker should not give the information to the patients. It’s ridiculous. That is a critical program in Japan to create the code of ethics for peer-worker. Japan peer-staff association is going to create the code of ethics at least to deny… to say no to the doctor. That is just situation.
要するにピアスタッフに対して、みゆきさんが言ったことについてちょっと付け加えると、情報を与えてもダメだと言うんですよね。だから、殆どバカげている話で、日本ピアスタッフ協会では倫理綱領をとにかく作って、ノーと言える倫理綱領を作ろうとしています。つまりピアスタッフとしての働き方とか、行動の仕方に一定の枠をはめて、それを例えばどんな法律で担保するのかとかいうところまで詰めて、実効性のあるものをつくらないと、このままだと言いなりになってしまうので、ということです。
Moderator: Is there any question?
Actually, I am very interested in the Arts for psychiatric disabilities. You are from WASEDA and your major is Social Arts ,and you mentioned about Art activities? I wonder what kind of Arts activities ?? psychosocial disabilities in Japan? Number one. Second, is there any model do you have in Japan? I heard that we’re already doing painting, acting, something like that. I wonder if there is something new activities, art activities ??
Thank you for your question. Actually, I study Chinese case. But I have some networks in Japan also. As I understand, Japan started it after World War II, especially 90s in paintings and plus in social welfare facilities and specially ??. There are also ?? performances Japanese ?? because of 2020 Tokyo Olympic and Special Olympics. At the time ?? art program for disabled people. Japanese government give many fundings to social welfare facilities all over Japan. Disability arts movement, but….
わたしは実際は中国の障害者のアートについて研究をしているんですが、日本にもネットワークがあります。それでわたしの理解している限りで言いますと、日本は第二次世界大戦が終わった後から、社会福祉施設でこういったことが始まりました。また特殊学級でも取り組まれています。特には絵画であったり、立体造形ですね。日本の新しいムーブメントしては2020年の東京オリパラに向けてですけれども、文化プログラムに障害者アートというものが設けられることになったために、政府がかなりの補助を出していることがあります。もちろんアートと言った場合に、美術系だけではなくて、音楽、ダンス、パフォーマンス、演劇みたいなものもあります。というところまで言いましたが。
Have I answered your question enough?
I’m sorry, I don’t know how to pronounce name of the professor Sekiguchi, I have a question that you just mentioned that in Japan, I am not sure if heard it right, that the peer-supporter can provide informations to patients ?? to the ??
The Labor and Walfare Ministy and psychiatric doctor, who always own the hospital, say that peer-staff in the hospital should not give the patients any information for him, for her advocacy. That’s crazy.
??
Yeah. The role of the inform is that another person, peer supporter cannot… should not, very ridiculous they said… they insisted.
Moderator: Any question to the answer?
What is the question?
Is peer-supporter already paid position or institutionalized position in Japan?
I said peer-supporter and peer-staff. Peer-staff means the staff working for the pay, you know. I am not saying about peer-staff. I am working for the part-time job of course. I have a work for area life supporting center. Of course for psychosocial disabilities. I also do to promote from the hospital to the area, deinstitutionalization, dehospitalization, to assist ?? the peer life-support. I myself have a good pay, but not most of the peer staff have a minimum wage, very cheap.
Moderator: Is there any question?
少し追加で、今まで私たち非公式なっていうか、民間の…私たちが作り上げた活動としては、主に入院中の方に地域の情報を…「あなたが退院したら、こういう介護者を使えますよ」とか、「こういうグループホームがありますよ」とかいうふうな情報提供をして来ました。だから、諦めなくていいよ、暮らしを作れるよ、っていうふうな…力を彼らに提供していくこと、イコール情報を提供していくこと、というふうに思ってきたわけですね。ところが、来年から実施されようとしている病院協会、国が予算をつけたピアサポ活動とういものは、そうした情報を入院中の方に提供してはいけない、というふうに、綱領として、ピアサポートガイドラインの中に、情報を提供してはいけない。それはあくまでも、情報を提供するのは病院の職員であって、ピアの活動は、ピアスタッフは話を聞くだけであって、一番の線を越えてはいけない、っていうふうなラインを彼らがつくろうとしてきていること。そのことに対して、とても、私たちとは相容れないなと思って、そこに意見書のようなかたちで意見を言って行ってるところです。
That’s a reason and report to the doctor? Nonsense.
I agree it is a nonsense.
Thank you. Next session is インドネシアと韓国？ もう終わった？
ちょっとだけ挨拶をしてもらおうか。
Moderator: ?? and comments?
First of all, I agree with professor Yuga. ?? I agree with you because it seems like at the Psychiatry, do not ?? ask to be well informed. In Indonesia, they have information of all medications. They do not tell us ?? about the side effects, about the dosages. As a ?? We have to find it out ourselves. Even about the what support for the diagnosis itself. ?? It’s never been explained truly. ?? So I’ve been thinking to myself it is my responsibility to give information as complete as possible to my peer. I do not care what they think. They may like it, or not like it, it’s not my business. My business is for the well-being with psychosocial disabilities. Also, a question for Thailand. I ?? studied in the ?? to learn that your center you is founded by the fund. The government has a revelation that all company or all employers Has to employ persons with disability. ?? that’s like Japan? And if they don’t, they get fined. What kind of money So the fine, the money come from the fine goes to your center? For example, for the ?? we are like to learn for Indonesia ?? how do we find the procedure, the mechanism. The company who would not have employees with disability to get fine? How do you call it fine? How much do you have to pay ?? ?? in Indonesia ??.
Actually, your understand is colleague. Because we help a declaration by law from government say that how many who have more than 100 persons must employ 1 disability person. If they don’t employ, they have to give money to the government disability fund.
?? And the fund is founded ?? follows the government?
Under the government.
Ministry of what ?
(laugh)
I tried to ask him ?? ・what is the…those…that correct meaning.
Ministry of ??
There is a ?? disability fund? The money get from the companies do not employ people with disability I would like to learn ?? in which government ?? In Indonesia Social Welfare Ministry of Finance, under ??
Under social fund for… yeah
??
Moderator: After the session.
桐原：ありがとう。I am tired. Me too?
(Everybody everybody everybody tired! )
Yeah!
(3時間23分)
(ここまで本編)
了