(1)Neudert C, Oliver D, Wasner M and Borasio GD. "The course of the terminal phase in patient with amyotrophic lateral sclerosis," J Neurol. (2001) 248: 612-616.
(2)Smyth A et al. "End of life decisions in amyotrophic lateral sclerosis: a cross-cultural perspective," J Neurol. Sci. 152 [Suppl. 1] (1997) 93-96.
(3)Olney RK & Lomen-Hoerth C. "Exit strategies in ALS: An influence of depression or despair?" Neurology 2005; 65: 9-10.
(4)Rabkin JD et al. "Prevalence of depressive disorders and change over time in late-stage ALS." Neurology 2005; 65: 62-67.
(5)Albert SM et al. "Wish to die in end-stage amyotrophic lateral sclerosis," Neurology 2005; 65: 68-74.
(6)Oliver D et al. (eds.) Palliative care in amyotrophic lateral sclerosis: From diagnosis to bereavement. 2nd eds. Oxford University Press 2006. (80).
(7)Borasio GD et al. "Mechanical ventilation in amyotrophic lateral sclerosis: a cross-cultural perspective," J Neurol (1998) 245 [Suppl. 2]: 7-12.
(8)Gelinas DF, O'Connor P and Miller RG. "Quality of life for ventilator-dependent ALS patients and their caregivers," J Neurol. Sci. 160 [Suppl. 1] (1998) 134-136.
(9)Rabkin JD et al. "Predictors and course of elective long-term mechanical ventilation: A prospective study of ALS patients." Amyotroph. Lateral Scler. 2006; 7:2: 86-95.
(10)Kaub-Wittemer D et al. "Quality of life and psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregivers." J Pain and Symptom. 26-4 (2003) 890-896.
(11)Moss AH et al. "Patients with amyotrophic lateral sclerosis receiving long-term mechanical ventilation: Advance care planning and outcomes," Chest 1996; 110: 249-255. (251)
(12)Pool R. Negotiating Good Death: Euthanasia in the Netherlands. Binghamton, The Haworth Press. 2000.
(13)Chi? A. et al. "Caregiver burden and patients' perception of being a burden in ALS," Neurology 2005; 64: 1780-1782.
(14)Hecht MJ et al. "Burden of care in amyotrophic lateral sclerosis," Palliative Med. 2003; 17: 327-333.
(15)Chi? A. et al. "A cross sectional study on determinants of quality of life in ALS," J Neurol. Neurosurg. Psychiatry 2004; 75: 1597-1601.
(16)Borasio GD and Voltz R "Discontinuation of mechanical ventilation in patients with amyotrophic lateral sclerosis," J Neurol. (1998); 245: 717-722.
(17)Burchardi, N et al. "Discussing living wills: A qualitative study of a German sample of neurologists and ALS patients," J Neurol Sci. 237 (2005) 67-74. (72)
(18)Mitsumoto H and Rabkin JG. "Palliative care for patients with amyotrophic lateral sclerosis: "prepare for the worst and hope for the best"" JAMA, July 11. 2007. vol. 298. no. 2 : 207-216 (210).
(19)Benditt JO et al. "Empowering the Individual with ALS at The End-of-Life: Disease-Specific Advance Care Planning," Muscle & Nerve, 24 (2001- December): 1706-1709.
2.学会発表
的場和子・藤原信行・堀田義太郎. 英国における尊厳死法案をめぐる攻防1――2003〜2006. 日本保健医療社会学会. 第33回大会. 新潟県医療福祉大学. 2007.5.19.
堀田義太郎・的場和子. 英国における尊厳死法案をめぐる攻防3――英国Leslie Burke裁判Munby判決の再評価. 日本保健医療社会学会. 第33回大会.新潟県医療福祉大学. 2007.5.19
的場和子・堀田義太郎. 延命治療の差しひかえ/中止に関するガイダンスの意味するもの――英国の場合. 第12回日本緩和医療学会大会. 岡山コンベンションセンター. 2007. 6.23.
Ando M, Hotta Y, Kawaguchi Y, Tateiwa S. "Examining the capabilities of ALS patients," Conference of the HDCA (the Human Development and Capability Association): "Ideas Changing History" September. 17-20, 2007 in NY New School University.
堀田義太郎. 「ケアの社会化」を再考する――有償化=分業化の可能性と限界. 社会思想史学会. 第32回大会. 立命館大学. 2007.10.17.
堀田義太郎. 介護・介助の労働化の条件. 日本生命倫理学会. 第19回年次大会. 大正大学. 2007.11.10.